Earlier this year we developed a suite of new resources to assist families during the schooling years. The goal is for parents and carers to feel they can trust their child with TSC will be ‘in safe hands’ during their school years and feel their child will be understood and supported both physically and emotionally.
The In Safe Hands resources include an advocacy guide for families of children with TSC and a guide for teachers and educators of children with TSC.
The advocacy guide for families provides information on how you can be an effective advocate for your child with TSC at school. Whilst every child with TSC is unique and every circumstance is different, we hope it will provide you with useful suggestions for how to get the best help and interventions to ensure your child’s needs are met. The guide is available as a downloadable and print-at-home pdf.
The guide for teachers will help educators better understand how TSC affects every child differently and the range of cognitive abilities in affected children is highly variable. The guide will provide teachers with an understanding of TSC and will provide some insights into the learning challenges a child living with this condition might face. The guide is available as a downloadable and print-at-home pdf.