If you or your loved one lives with TSC, please complete our TSC health care survey

New or Suspected Diagnosis of TSC

A diagnosis or suspected diagnosis of TSC (Tuberous Sclerosis Complex) has probably come as a shock to you and your family. These booklets have been written by people that have someone in their family affected by TSC. We hope this information will help you through this difficult time and answer some of your questions. 

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My unborn baby has suspected/possible TSC

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My child has been diagnosed with TSC 


I am an adult diagnosed with TSC

When you feel ready we encourage you to contact the TSA Nurse via this website or by calling 1300 733 435 (Australia only). This is a free and confidential service where you can speak to a Registered Nurse about anything to do with TSC.