Surveillance and Screening
Regular surveillance and screening is absolutely critical for anyone living with TSC as symptoms change over time. Regular surveillance and screening offers the best chance of early and successful intervention.
In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed and updated the TSC criteria for diagnosis, surveillance and management published in 2013. The published papers are available below.
This page provides brief summary of the consensus recommendations for monitoring individuals with TSC. The updated diagnostic criteria for TSC is available here.
You can also get a printable pdf of both the diagnostic criteria and the surveillance and management guidelines by clicking here. This can be useful information to print out for your GP.