Skin-related issues in TSC

Four out of five people living with TSC will experience some form of skin issue and because of their high visibility these issues can be very distressing.

On this page you will find TSA’s zoom education event, in which Associate Professor Deshan Sebaratnam, Staff Specialist at Liverpool Hospital, NSW talks about the symptoms, treatment and management of TSC-related skin issues. A/Professor Sebaratnam is an academic at UNSW and the University of Sydney and has a strong interest in research, having published his work in international medical journals and presented at conferences around the world.

Please note: The opinions expressed are those of the presenter(s) and are not an official pronouncement of TSA.  Please consult your health professional before taking any action based on the information provided.

Resources

ASD and ADHD
Financial supports
Getting the most out of a visit to your GP
Identifying emerging challenging behaviours
In Safe Hands: An introductory guide to TSC for teachers and educators
In Safe Hands: How to be a good advocate for your child with TSC at school
Life expectancy of people living with TSC
Mindfulness
New diagnosis parachute packs
Neurodevelopmental disorders in children
Reach Out
Sex and sexuality in young people with TSC
Skin-related issues in TSC
Sleep issues in children with TSC
Transitioning from child to adult care
TSA updates
Tubee children’s picture book about TSC
Useful organisations and contacts
Using Facebook
Video library