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Understanding TSC

TSC (Tuberous Sclerosis Complex) is a complex condition. The genetic changes that cause TSC can lead to signs and symptoms in many different organs of the body and these often change over a person’s lifetime. These pages are intended to help you understand all aspects of TSC. Some will be relevant to you and others will not be. Some will become relevant later. 

We provide you with access to accurate, balanced information about TSC, best practice management and surveillance, latest research and treatment options.  This information has been reviewed by our Medical Advisory Panel but should not be used as a substitute for medical advice. 

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New or Suspected Diagnosis

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Diagnostic Criteria

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Genetics and TSC

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Signs, Symptoms and Treatments

Surveillance and Screening

Surveillance and Screening

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TSC Research