It's not too late to take the challenge
Because many of us were in lockdown for several months in 2021 we have extended the opportunity for you to get involved in our #40kfor40years challenge. Put your new year's resolution to good use!
If you would like to help us continue our vital work supporting and advocating for everyone in Australia affected by TSC please click here to sign up to fundraise or to make a donation.
SIgn me up for the challenge
About TSC and TSA
Tuberous Sclerosis Complex (TSC) is a rare genetic condition that causes tumours to grow in various organs of the body. It affects more than 2,000 people in Australia and thousands more families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch this short video called “Meet Abby”
For 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC. To find out more about TSA’s work please watch our video. Please consider supporting our work so that TSA can continue to provide programs and services that help to improve the lives of everyone impacted by TSC.
Latest News
Would you like to be part of the RArEST Project?
The RArEST project is a federal government funded initiative that aims to increase awareness, education, support and training for rare diseases among health professionals and within the rare disease community. Rare Voices Australia is looking for people with lived... Read More
We are hiring!
TSA is seeking a new telehealth nurse to support its lovely Community. This is a part-time, flexible, work from home role (approx. 6 hours per week) providing telephone support and information to people in Australia affected by TSC. As... Read More
TSA telehealth nurse
We are sad to announce that Kim, our TSA telehealth nurse, will be leaving our team shortly. We thank Kim for the fantastic support and information she has provided to so many of our TSC Community. Kim says the... Read More
Diagnosis, surveillance and management of TSC – Printable PDF available
You can now find a printable pdf of both the updated TSC diagnostic criteria and the updated TSC surveillance and management guidelines on our website, by clicking here. Read More
