Tuberous Sclerosis Complex (TSC) affects more than 2000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease.
TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.

Tuberous Sclerosis Australia empowers people affected by TSC through access to the best treatment options, up to date information and support. TSA was previously The Australasian Tuberous Sclerosis Society (ATSS).

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Latest News

Help us secure funding for new TSC epilepsy treatment
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In July, the Pharmaceutical Benefits Advisory Committee (PBAC) will consider an application from Novartis for Everolimus/Afinitor to be listed on the Pharmaceutical Benefits Scheme (PBS) for people with TSC who are experiencing seizures that do not respond well to... Read More

Improve our understanding of difficult behaviours in TSC
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Many families with TSC struggle with challenging behaviours. This study aims to understand not only which behaviours are associated with Tuberous Sclerosis Complex, but also which behaviours are of most concern to parents and caregivers. Please see the flyer for... Read More

2017 Lizzie’s Lunch
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The 2017 Lizzie’s lunch will be on Sunday 4 June from 12.30pm at our new venue, The Hills Lodge in Castle Hill. Grab yourself and nine friends to make a table. Read More

Reach Out, April 2017
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The April 2017 edition of Reach Out is now available to read online. This issue’s contents include: Huge achievements of the TSC Heroes at Ironman Western Sydney Stories from people living with TSC, including Greta’s story A focus on... Read More

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