I have a <strong>new diagnosis</strong> of TSC

I have a new diagnosis of TSC
<strong>I have</strong>, or care for someone, with <strong>TSC</strong>

I have, or care for someone, with TSC
I am a <strong>health professional</strong>

I am a health professional
I want <strong>to help</strong> families with TSC

I want to help families with TSC

Last Chance to Register for Our Zoom Education Event: Transitioning from Child to Adult Care

Tuesday 28 September 2021, 7pm AEST

Transitioning from paediatric to adult care can be a cause of great stress and concern. In this session we will discuss:

  • Planning and managing a successful transition
  • The role of your GP
  • How hospitals can help and tools that are available

This session will be presented by Patricia Thornton and Sharryn Wells from the Child Development Team at Queensland Children’s Hospital Brisbane.

Register Now

About Tuberous Sclerosis Complex (TSC)

TSC is a rare genetic condition that causes tumours to grow in any organ of the body.  It commonly affects the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. It affects more than 2,000 people in Australia and thousands more carers, families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch this short video called “Meet Abby”

For 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC through access to the best treatment options, up to date information and support. We can only continue to do so with your support.

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Latest News

17 Sep 2021

Do you know about our children’s book?

A Little Book About TSC is the first children’s book of its kind in Australia. It helps to explain this complex condition to the children who live with TSC, their friends, family members and classmates. Read More

15 Sep 2021

Read all the latest news from TSA

TSA's September newsletter is now available for you to read online. In this months issue, you can find out about our upcoming Zoom education event and TAND+ conference, plus the winner of the Elizabeth Pinkerton Memorial Award. Read More

14 Sep 2021

Have your say in the GeneEQUAL study

GeneEQUAL is a new study in NSW looking at how we can provide inclusive genomic healthcare. The first step involves interviews with adults with intellectual disability about their experiences with genetic services, even if that happened when they were... Read More

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Become a Member of TSA

We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

Join us now

Subscribe to our Newsletter

Stay up-to-date with the latest TSC-related research, information and news. Our regular enewsletters will be send directly to your inbox making sure you never miss important dates, events and developments.

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