I have a <strong>new diagnosis</strong> of TSC

I have a new diagnosis of TSC
<strong>I have</strong>, or care for someone, with <strong>TSC</strong>

I have, or care for someone, with TSC
I am a <strong>health professional</strong>

I am a health professional
I want <strong>to help</strong> families with TSC

I want to help families with TSC

New TSC Research Trial

We are delighted to let you know that our friends at Sydney Children’s Hospital in Randwick are now recruiting for the TSC-STEPS research trial (formerly known as STOP2).
The purpose of this ground-breaking research is to learn more about the safety and efficacy of early Sirolimus treatment to prevent or delay seizure onset in infants diagnosed with TSC.  Infants 0 to 6 months old who are diagnosed with TSC and have no history of seizures may be eligible to participate.
If needed, TSA can offer some assistance with travel and accommodation costs for families who participate in the trial.
Find out more

 

About TSC and TSA

Tuberous Sclerosis Complex (TSC) is a rare genetic condition that causes tumours to grow in various organs of the body. It affects more than 2,000 people in Australia and thousands more families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch our video called “Meet Abby”.

For over 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC. We are a trusted partner of the TSC Community. To find out more about TSA’s work please watch this video. Please consider supporting our work so that TSA can continue to provide programs and services that help to improve the lives of everyone affected by TSC.

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Latest News

21 Mar 2023

New TSC Research Trial Now Recruiting in Australia

We are delighted to let you know that our friends at Sydney Children’s Hospital in Randwick are now recruiting for the TSC-STEPS research trial (formerly known as STOP2). The purpose of this ground-breaking research is to learn more about... Read More

21 Mar 2023

All the latest news from TSA

TSA's March 2023 e-newsletter is now available. In this issue details for an upcoming TSC event in Melbourne and information on new clinical trials now recruiting. Read More

16 Mar 2023

New Cannabidiol (CBD) research study – Now Recruiting

Researchers at The Royal Children’s Hospital in Melbourne are conducting a new medical research study exploring the potential benefits of medicinal cannabis for managing behavioural symptoms in children with developmental disabilities. Children aged 6 to 18 years with an... Read More

15 Mar 2023

TSC Global Awareness Day 2023

Every year on May 15, individuals and families around the world who are impacted by TSC come together to raise awareness for this devastating rare disease. Read More

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Become a Member of TSA

We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

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