TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.
Tuberous Sclerosis Australia empowers people affected by TSC through access to the best treatment options, up to date information and support. TSA was previously The Australasian Tuberous Sclerosis Society (ATSS).
The Elizabeth Pinkerton Memorial award is given annually by TSA to a health professional to recognise their efforts to improve the lives of TSC affected families in Australia. Nominations close on Friday 29th July. Read More
Lizzie’s Lunch is held each year in Sydney. So far the event has raised more than $21,000 for TSA’s support services. Lizzie Pinkerton was a vibrant young girl with a cheeky sense of humour. She lived with Tuberous Sclerosis... Read More
The April 2016 edition of Reach Out is now available to read online. This edition’s contents include: A focus on the national disability insurance scheme (NDIS) including the experiences of several people with TSC and their families, as well... Read More
PKD Foundation Australia are a new organisation working to find a cure for Polycycstic Kidney Disease (PKD). Between 5000 and 6000 Australians live with PKD, and a small number of them also have tuberous sclerosis. Research has estimated that... Read More