It's not too late to take the challenge

Because many of us were in lockdown for several months in 2021 we have extended the opportunity for you to get involved in our #40kfor40years challenge. Put your new year's resolution to good use!

If you would like to help us continue our vital work supporting and advocating for everyone in Australia affected by TSC please click here to sign up to fundraise or to make a donation.

SIgn me up for the challenge


About TSC and TSA

Tuberous Sclerosis Complex (TSC) is a rare genetic condition that causes tumours to grow in various organs of the body. It affects more than 2,000 people in Australia and thousands more families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch this short video called “Meet Abby”

For 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC. To find out more about TSA’s work please watch our video. Please consider supporting our work so that TSA can continue to provide programs and services that help to improve the lives of everyone impacted by TSC.

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Latest News

Would you like to be part of the RArEST Project?

The RArEST project is a federal government funded initiative that aims to increase awareness, education, support and training for rare diseases among health professionals and within the rare disease community. Rare Voices Australia is looking for people with lived... Read More

We are hiring!

TSA is seeking a new telehealth nurse to support its lovely Community. This is a part-time, flexible, work from home role (approx. 6 hours per week) providing telephone support and information to people in Australia affected by TSC. As... Read More

TSA telehealth nurse

We are sad to announce that Kim, our TSA telehealth nurse, will be leaving our team shortly. We thank Kim for the fantastic support and information she has provided to so many of our TSC Community. Kim says the... Read More

Become a Member of TSA

We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

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Stay up-to-date with the latest TSC-related research, information and news. Our regular enewsletters will be send directly to your inbox making sure you never miss important dates, events and developments.

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