TSA was delighted to launch its new diagnosis resources on TSC Global Awareness Day, 15 May 2020. The honourable Greg Hunt, MP, Minister for Health said of the resources:

While we know rare diseases are complex, they share countless commonalities, including the love and support individuals receive from friends and loved ones when diagnosed.

For those living with Tuberous Sclerosis, a diagnosis can be daunting for individuals and those who support them. The Parachute Pack will assist them by providing up-to-date information, connections and support they need in the early days as they learn about this disease. I commend Tuberous Sclerosis Australia for putting together this resource for their community.

About Tuberous Sclerosis Complex (TSC)

TSC affects more than 2,000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives.

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Tuberous Sclerosis Australia (TSA) empowers people affected by TSC through access to the best treatment options, up to date information and support.

Support TSA. We want to improve the lives of Australians living with TSC but can only do so with your support. Please consider making a tax deductible donation today.