Call out for photos and stories
TSA is currently preparing its Annual Report for 2021. If you would like to share any high quality photos of yourself or your children living with TSC and/or provide quotes about our work, please do get in touch. We'd love to hear from you.
We're also always very happy to hear from anyone in our community who would like to share their TSC story for possible publication in Reach Out and on our website. We know this can be challenging for some people, but it's a great way to help other people in our community who are going through similar experiences. And, you don't have to write the story yourself. You can take part in a telephone interview and we'll write the story up and send it to you to make changes before it is published.
If you have photos and/or a story you think you'd like to share, please email us - [email protected]
About Tuberous Sclerosis Complex (TSC)
TSC is a rare genetic condition that causes tumours to grow in any organ of the body. It commonly affects the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, 
developmental delay and autism. It affects more than 2,000 people in Australia and thousands more carers, families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch this short video called “Meet Abby”
For 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC through access to the best treatment options, up to date information and support. We can only continue to do so with your support.
Latest News
Study of a cohort of adult patients with TSC
About this study This study describes the clinical and genetic characteristics, management and quality of life of adults with Tuberous Sclerosis Complex (TSC), who had been diagnosed in adulthood compared to those diagnosed in childhood. This Spanish study of... Read More
Treatment of cardiac rhabdomyomas with mTOR inhibitors in children with TSC: A systematic review
Cardiac rhabdomoyomas and TSC Cardiac rhabdomyomas (CRs) are non-cancerous tumours in the heart. Both single and multiple CRs are a major diagnostic criteria for TSC, with the likelihood of TSC diagnosis varying depending on the number of CRs. Multiple... Read More
Zoom Education Event on ASD and ADHD – Register Now
TSA’s next Zoom Education Event is on Tuesday 27 July 2021 at 7pm AEST. Topic: Autism (ASD) and Attention Deficit Hyperactivity Disorder (ADHD). Presenters: Vinita Prasad, Developmental Paediatrician and John Tracey, Child Development Nurse Navigator for ASD, Queensland Children’s... Read More
TSC research project
Flinders University Medical School is conducting a research project into how TSC patients and their carers are impacted by the disease, and how the medical system can best help. See below for more information. If you think you’d like... Read More
