We are stronger together
For 45 years TSA has been Australia’s go-to resource for information, advice and support for families like Oskar’s. We help create a better life and more hopeful future for everyone affected by TSC (Tuberous Sclerosis Complex) by providing information, support and connection. Join TSA today.
TSC (Tuberous Sclerosis Complex) is a rare genetic condition that causes tumours to grow in major organs of the body.
It affects more than 2,000 people in Australia and thousands more families and friends.
TSA is the only organisation in Australia supporting people living with TSC.
1 child each week
Every week in Australia another child is born with TSC. Two-thirds have no family history. Many children are not diagnosed until they experience symptoms such as infantile spasms or seizures.
1 million worldwide
Nearly 1 million people are estimated to have TSC. Life-long surveillance is essential. Help shine a light on TSC by getting involved in TSC Global Awareness Day held annually on 15 May.
Stories from our TSC Community
Otis
Otis is 18 months old. He was diagnosed with TSC in utero. His family has kindly shared what their journey has been like so far...
Lilly
Lilly is one of Dave and Erin's four amazing daughters. Their first child, Lilly, who lives with TSC, is now 12 years old. She averages 2 to 3 seizures daily...
Olivia
Olivia is a 25-year-old competition-level skater who lives in Brisbane. Olivia was diagnosed with TSC before she was even born....
See all the Stories from our TSC Community
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Get Informed
We provide access to accurate, balanced information about TSC.
Get Support
We are here so that no-one has to face the challenges of TSC alone.
Join Us
Become a member of TSA to help change lives for people living with TSC.