Would you like to share your TSC story?

At TSA we are often told that reading people's stories about their family's TSC journey provides a lot of comfort and reassurance. It can also help reduce feelings of frustration and isolation.

If you would be happy to share your TSC story with us and the TSC Community, we'd love to hear from you. We can assure you we will never publish a story without giving you the chance to edit and approve it first.

If you would like to find out more, please email [email protected] using the subject line - I would like to share my story.

We look forward to hearing from you.

About TSC and TSA

Tuberous Sclerosis Complex (TSC) is a rare genetic condition that causes tumours to grow in various organs of the body. It affects more than 2,000 people in Australia and thousands more families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch our video called “Meet Abby”.

For over 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC. We are a trusted partner of the TSC Community. To find out more about TSA’s work please watch this video. Please consider supporting our work so that TSA can continue to provide programs and services that help to improve the lives of everyone affected by TSC.

Donate Now

Latest News

Thank you for coming to Comedy for a Cure 2022!

We are thrilled to share we raised over $25,000 to help people living with TSC in Australia. The funds raised will directly help people affected by TSC to access ground-breaking new treatments and research that are taking us closer to... Read More

Become a Member of TSA

We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

Join us now

Subscribe to our Newsletter

Stay up-to-date with the latest TSC-related research, information and news. Our regular enewsletters will be send directly to your inbox making sure you never miss important dates, events and developments.

All information collected by TSA and provided by you is in accordance with our Privacy Policy

Our Sponsors