Zoom Education Events
We are delighted that our first two zoom education events in July were both well attended and very well received. If you've got ideas on TSC-related topics you'd like to know more about in future events we'd love to hear from you. Please email [email protected]
About Tuberous Sclerosis Complex (TSC)
TSC affects more than 2,000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease. TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives.Donate Now
Tuberous Sclerosis Australia (TSA) empowers people affected by TSC through access to the best treatment options, up to date information and support.
Support TSA. We want to improve the lives of Australians living with TSC but can only do so with your support. Please consider making a tax deductible donation today.
People with TSC and intellectual disability often have more health problems. Many of these health needs can be met by GPs, but sometimes a specialised approach is needed. The good news is that NSW Health has recently announced that... Read More
In this issue of Research Round Up we have included two very different research reports which we hope will be of interest to our TSC Community; Improving developmental abilities in infants with TSC and Multidisciplinary model of care for... Read More
Thank you to everyone who took part in our Reach Out survey earlier this year. Encouragingly, most people said they read the magazine from cover to cover and that they find the content always interesting and relevant. Readers rated... Read More
About this study This study reports on 90 adults with TSC who attended Centre Hospitalier Universitaire de Bordeaux, between January 2000 and September 2018. Since 2015 this institution has been providing a multidisciplinary team approach to the care of adults with TSC. It does... Read More