I have a <strong>new diagnosis</strong> of TSC

I have a new diagnosis of TSC
<strong>I have</strong>, or care for someone, with <strong>TSC</strong>

I have, or care for someone, with TSC
I am a <strong>health professional</strong>

I am a health professional
I want <strong>to help</strong> families with TSC

I want to help families with TSC

Registrations are now open for the TSC Community Virtual Conference - Sat 15 May (1pm-5pm AEST) and Sun 16 May (9am-1pm AEST)

The Conference provides a unique opportunity to hear from and ask questions of expert TSC health professionals.  Click here to see the Full Program.

This is a must attend event for everyone affected by TSC, including adults, families and carers. Financial assistance is available to cover the event registration fee.

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About Tuberous Sclerosis Complex (TSC)

TSC is a rare genetic condition that causes tumours to grow in any organ of the body.  It commonly affects the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. It affects more than 2,000 people in Australia and thousands more carers, families and friends. There is no known cure, but with appropriate support most people with TSC can live fulfilling lives. To find out more about TSC, please watch this short video called “Meet Abby”

For 40 years Tuberous Sclerosis Australia (TSA) has been informing, empowering and connecting people affected by TSC through access to the best treatment options, up to date information and support. We can only continue to do so with your support.

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Latest News

15 Apr 2021

Read our April e-newsletter now available

Read all the latest news in TSA's April 2021 e-newsletter online now. In this issue, you'll find information on our upcoming national TSC conference, how to nominate a TSC health professional for the EPMA award and more. Read More

14 Apr 2021

April 2021 update on the COVID-19 vaccination program

As you will have heard the Government has recently recommended that people under 50 years of age are given the Pfizer vaccine rather than AstraZeneca.   We know that this may have resulted in the postponement of vaccinations for some... Read More

1 Apr 2021

Reach Out, April 2021

The April 2021 edition of Reach Out is now available to read online. This is TSA’s 40th anniversary issue!  Read More

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Become a Member of TSA

We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

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Stay up-to-date with the latest TSC-related research, information and news. Our regular enewsletters will be send directly to your inbox making sure you never miss important dates, events and developments.

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