Tuberous Sclerosis Complex (TSC) affects more than 2000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease.
TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.
Tuberous Sclerosis Australia empowers people affected by TSC through access to the best treatment options, up to date information and support.
Help TSA by donating to our Christmas Appeal. Give a Christmas gift that changes lives by making a tax deductible donation today.
Tuberous Sclerosis Australia is searching for our next general manager. Since 2011 Clare Stuart has played a critical role in the development, growth and success of our organisation. Clare believes this is the right time for her to step... Read More
We are pleased to share news that everolimus (Afinitor) for epilepsy has been added to Australia’s pharmaceutical benefits scheme (PBS). Today the Federal Health Minister, the Honourable Greg Hunt announced that this medicine to treat seizures for people with... Read More
Tuberous Sclerosis Australia is thrilled to announce our new partnership with nib foundation. Each year nib foundation donates around $2 million to make a positive difference to the health and wellbeing of Australian communities. The Australian TSC community thanks... Read More
Recently Selina, mother of Liam who lives with TSC attended and spoke at our 2018 Sydney TAND event. Selina writes a blog about the funny parts of life with TSC and autism. Here is what she had to say:... Read More