TSC (Tuberous Sclerosis Complex) is a rare genetic condition that causes tumours to grow in major organs of the body.

It affects more than 2,000 people in Australia and thousands more families and friends.
TSA is the only organisation in Australia supporting people living with TSC.

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We provide access to accurate, balanced information about TSC.

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We are here so that no-one has to face the challenges of TSC alone.

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We need your support to help change lives for people living with TSC.

Awareness is critical …

1 child each week

Every week in Australia another child is born with TSC. Two-thirds have no family history.  Many children are not diagnosed until they experience symptoms such as infantile spasms or seizures.

1 million worldwide

Nearly 1 million people are estimated to have TSC. Life-long surveillance is essential. Help shine a light on TSC by getting involved in TSC Global Awareness Day held annually on 15 May.

Stories from our TSC Community

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Tilly and Holly

We have 2 daughters. Holly is 15 and Tilly is 13 years old. Until very recently both our girls have been healthy with no major illnesses or health concerns…

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Harrison is just about to turn five and was diagnosed with TSC at five and a half months of age. He lives in Hahndorf, South Australia with …

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Bella is 30 and lives in Queensland. Bella was diagnosed with TSC when she was just 8 months old as a result of her parents noticing some seizure…