The Tuberous Sclerosis Complex International (TSCi) meeting in Windsor brought together TSC organisations from 22 countries to share knowledge and ideas and plan for future TSCi activities. The meeting welcomed representatives from Belgium, Brazil, Mexico, Russia, Slovakia and Switzerland for the first time.
Clare Stuart from Tuberous Sclerosis Australia and Murray Leikis from Tuberous Sclerosis Complex New Zealand attended the meeting. Clare is co-chair of TSCi along with Katie Smith from TS Alliance (USA). The key panel discussion included input from doctors and TSC organisations to understand how we can work together towards more coordinated multi-disciplinary team based care for people with TSC. Plans were also made for Global Awareness Day in 2016 and strategies for raising public awareness and fundraising were shared.
Find out more about TSC International at https://tscinternational.org/