Dr Orli Wargon, a paediatric dermatologist at Sydney Children’s Hospital, is the recipient of the 2018 Elizabeth Pinkerton Memorial Award. This award is given annually by Tuberous Sclerosis Australia to a health professional in recognition of their efforts to improve the lives of families living with TSC in Australia. Dr Wargon is the eighth recipient of this award and joins three others from the TSC clinic at Sydney Children’s Hospital.
In the last few years Dr Wargon has been particularly focussed on TSC as a part of the Treatment trial investigating the effectiveness of topical rapamycin for the facial angiofibromas.
Several members of the Australian TSC Community nominated Dr Wargon for this award, including Kate Norris, mum to Liam who has TSC:
“We’ve been in Orli Wargon’s good care since our son Liam was a baby nearly ten years ago. Participating in Orli’s fantastically well-run rapamycin trial was a privilege. Liam has continued to use his ‘magic cream’ since then and his face is looking so clear. Thank you Dr Wargon, for being at the forefront of research that’s benefiting people with TSC in such a direct way.”
Debbie Crosby, president of TSA and Mum to Alana who has TSC, adds:
“We are very lucky to have Orli as our dermatologist for our daughter Alana. Orli is so knowledgeable, caring and always explains things so well. Her leading role in the rapamycin cream trial has helped so many families and has such a positive impact in the lives of people living with TSC in Australia.”
We presented the award to Dr Wargon, who responded:
“I have been working with Tuberous Sclerosis Australia for a couple of decades. I am really honoured that you have given me this award. I thoroughly enjoy the TSC Clinic and watching all the children grow into adulthood. Thank you very much.”
If you would like to make a nomination for the 2019 Elizabeth Pinkerton Memorial Award, please visit www.tsa.org.au/epma