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Stay up to date with COVID-19

If you or a member of your family have TSC, you may have questions or feel anxious about how COVID-19 may affect you.

Having TSC does not make you more likely than anyone else to catch coronavirus, and it does not necessarily mean that you are at greater risk of developing severe symptoms.

Unless you or your child is acutely unwell, we encourage you to talk to your doctor about the implications of COVID-19 specific to your individual circumstances.  If you or your child is acutely unwell call 000 for emergency assistance.

The most up-to-date and recommended links and sources of more general health information are detailed below:

Health Alert Website

The Australian Government’s Department of Health Coronavirus (COVID-19) Australian Government Health Alert Website will have the very latest information.  The Government has identified those with chronic medical conditions and compromised immune systems as being among those most at risk, alongside of course the elderly.

TSA also continues to advise referring to your specific State health authorities as Australia continues to have some variations from State to State.  For the relevant link to your State health authority please see https://tsa.org.au/coronavirus/

GPs and Telehealth

Many hospitals are looking at ways that they can make their appointments telehealth so we recommend you call the clinic and see if this is possible. Obviously, not all appointments can be provided by telehealth (you may still need to attend for tests etc) but many follow up appointments are now being offered by phone or video consults to keep people away from hospitals.

Some GPs are now also offering telehealth consults particularly for those who have compromised immunity.  For more on this, see  https://theconversation.com/want-to-skype-your-gp-to-avoid-exposure-to-the-coronavirus-heres-what-you-need-to-know-about-the-new-telehealth-option-133433

Bulk Billing

Your GP may be able to bulk bill you for these telehealth services as the government has now made this option available to people with chronic health conditions. This is an important way to ensure people can continue to access vital health support – including those who need chronic disease management support. Phone your regular GP to schedule a time for a telephone or video consult free of charge (bulk billed via the Medicare Benefits Scheme).

National Coronavirus Helpline

The Australian Government’s National Coronavirus Helpline has very useful information on COVID-19 and Is a free call number 1800 020 080.

COVID-19 Symptom Checker

If your or your child’s symptoms are NOT URGENT and you require some information on symptoms and how to differentiate between the cold, flu and Covid-19, use one of these symptom checkers:   https://www.health.gov.au/resources/publications/coronavirus-covid-19-identifying-the-symptoms and HealthDirect Australia Symptom Checker which will help you understand if and when you need to seek further medical advice.

Medicines Australia

It is recommended that you have one months’ full supply of medicines on hand.  Whilst Medicines Australia has advised that there are no anticipated shortages in medicines at this time, all situations are subject to change.

NDIS Updates

This media release announces the new measures to support NDIS participants Media Release 23/03/2020 More information can be found at NDIS More Information

Remember too that it is just as important to consider your and/or your child’s wellness and mental health at this time.  Keep a look out for TSA’s posts on these subjects on this website and on Facebook.

As always, our TSA Nurse is here to provide support on all TSC-related topics and you should never feel alone. You can contact our nurse by phone on 1300 733 435 or via email at [email protected]

We hope you and your family and friends all remain safe and well during this time.