Free Zoom Education Events

Category: Events, TSA News | 0

TSA is offering two free zoom education events on topics you have told us you need help with. We will connect you with leading experts who can offer practical tips and answer your questions. These online events are free to … Read More

Parachute Packs now available

Category: Events, TSA News | 0

Thank you to everyone who joined us on Friday 15 May, TSC Global Awareness Day for the launch of our Parachute Pack. If you missed it, you can click here to view a recording of the event. We are thrilled that families of children who are diagnosed with Tuberous Sclerosis Complex (TSC) will, for the first time, have access to accurate, up-to-date support and information packs, ensuring they are aware of life-changing early intervention treatments for their child.

Today is TSC Global Awareness Day

Category: Events, TSA News | 0

Today is TSC Global Awareness Day and we are launching our Parachute Pack. Please join us at 10am this morning for a virtual event where we will come together to mark this special day and these wonderful new educational resources for families facing a new diagnosis of TSC.

Join us for TSC Global Awareness Day

Category: Events, TSA News | 0

You are invited to join us at 10am (AEST) on Friday 15 May for a zoom video call to mark TSC Global Awareness Day and celebrate the launch of TSA’s new diagnosis parachute packs. Get your family together and have some fun.  Put on your (temporary) TSC wave tattoos and give us a song, a dance, or just a wave to show your support for everyone living with TSC.

Rare Disease Day Event

Category: Events | 0

You are invited to join Genetic Alliance, Sanofi Genzyme and Syndromes without a name for an evening of discussion and interaction with the rare disease community. Those impacted by rare diseases often experience significant health, psychosocial, economic burdens and diagnostic … Read More

Tickets are selling fast for Comedy for a Cure

Category: Events, Fundraising | 0

Tickets are now on sale for Sydney’s first Comedy for a Cure. We hope you will join us for a night where we will harness the power of laughter to raise critically needed funds to help people affected by a rare and devastating disease called Tuberous Sclerosis Complex (TSC). Comedy for a Cure will feature a fantastic line up of comedians with Peter Berner headlining the show

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