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Book a call with our Nurse Donate
  • Understanding TSC
    • New or Suspected Diagnosis of TSC
    • Diagnostic Criteria
    • Genetics and TSC
    • Signs, Symptoms and Treatments
    • Surveillance and Screening
    • Research 
  • Find Support
    • Connect with our TSC Community
    • Connect with our Nurse
    • Our Regional Contacts
    • Resources
    • Stories from our TSC Community
    • Events
    • National Disability Insurance Scheme (NDIS)
    • News
  • Support Us
    • Donate
    • Membership
    • Fundraise
    • Partnerships
    • Fundraising Events
    • Gifts in Will (Bequests)
    • Volunteer
    • How your Support Helps
  • For Health Care Professionals
    • Patients who have a New or Suspected TSC Diagnosis
    • About TSC
    • Managing TSC (for GPs/other clinicians)
    • Staying Up-to-Date
    • Referral to our Nurse
    • Elizabeth Pinkerton Memorial Award
    • TSA’s Medical Advisory Panel
  • About Us/Contact Us
    • Who We Are and What We Do
    • What We’re Working On
    • TSA’s Strategic Plan 2023-2025
    • Our Team
    • TSA’s Management Committee
    • TSA’s Medical Advisory Panel
    • Our Achievements
    • Impact/Annual Reports
    • Contact Us

All the Latest News

National Strategic Action Plan for Rare Diseases

26 Feb 2020
action plan rotated 1

Using the TAND checklist

16 Jan 2020
Petrus de Vries image 2017 portrait

Everolimus and uncontrolled epilepsy associated with TSC

14 Jan 2020
Oscar EEG

Thank you Kerfoot

19 Dec 2019
Oskar with ryan mia and brother scaled 1

New Disability & Rare Disease Report

5 Nov 2019
rare voices

Reach Out, October 2019

22 Oct 2019
cover RO 1
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  • Phone: 1300 733 435 (Australia only)
    Email: [email protected]
    Address: TSA (Tuberous Sclerosis Australia)
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    Beverly Hills NSW 2209
    Australia
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    • Acknowledgement of Country

    TSA acknowledges Aboriginal and Torres Strait Islander people as the traditional custodians of the lands on which we live and work and values their cultural knowledge, strength and resilience. We pay respect to Elders, past, present and emerging and to the Aboriginal and Torres Strait Islander people in our Community.


    Tuberous Sclerosis Australia Inc. is an incorporated association under New South Wales law. You can download and read our Constitution here. We are registered with the Australian Charities and Not-for-profits Commission (ACNC).
    Disclaimer: The information on this website is intended to provide basic information about Tuberous Sclerosis Complex (TSC). It is not intended to, and it should not, constitute medical or other advice. Readers are warned not to take any action without first seeking medical advice. The TSA Privacy Policy explains how we handle your personal information.
    Thank you to our supporters. TSA receives no ongoing government funding and relies on your generosity. All donations $2 and over are tax deductible.

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