Search
Book a call with our Nurse Donate
  • Understanding TSC
    • New or Suspected Diagnosis of TSC
    • Diagnostic Criteria
    • Genetics and TSC
    • Signs, Symptoms and Treatments
    • Surveillance and Screening
    • Research 
  • Find Support
    • Connect with our TSC Community
    • Connect with our Nurse
    • Our Regional Contacts
    • Resources
    • Stories from our TSC Community
    • Events
    • National Disability Insurance Scheme (NDIS)
    • News
  • Support Us
    • Donate
    • Membership
    • Fundraise
    • Partnerships
    • Fundraising Events
    • Gifts in Will (Bequests)
    • Volunteer
    • How your Support Helps
  • For Health Care Professionals
    • Patients who have a New or Suspected TSC Diagnosis
    • About TSC
    • Managing TSC (for GPs/other clinicians)
    • Staying Up-to-Date
    • Referral to our Nurse
    • Elizabeth Pinkerton Memorial Award
    • TSA’s Medical Advisory Panel
  • About Us/Contact Us
    • Who We Are and What We Do
    • What We’re Working On
    • TSA’s Strategic Plan 2023-2025
    • Our Team
    • TSA’s Management Committee
    • TSA’s Medical Advisory Panel
    • Our Achievements
    • Impact/Annual Reports
    • Contact Us
Book a call with our Nurse Donate
  • Understanding TSC
    • New or Suspected Diagnosis of TSC
    • Diagnostic Criteria
    • Genetics and TSC
    • Signs, Symptoms and Treatments
    • Surveillance and Screening
    • Research 
  • Find Support
    • Connect with our TSC Community
    • Connect with our Nurse
    • Our Regional Contacts
    • Resources
    • Stories from our TSC Community
    • Events
    • National Disability Insurance Scheme (NDIS)
    • News
  • Support Us
    • Donate
    • Membership
    • Fundraise
    • Partnerships
    • Fundraising Events
    • Gifts in Will (Bequests)
    • Volunteer
    • How your Support Helps
  • For Health Care Professionals
    • Patients who have a New or Suspected TSC Diagnosis
    • About TSC
    • Managing TSC (for GPs/other clinicians)
    • Staying Up-to-Date
    • Referral to our Nurse
    • Elizabeth Pinkerton Memorial Award
    • TSA’s Medical Advisory Panel
  • About Us/Contact Us
    • Who We Are and What We Do
    • What We’re Working On
    • TSA’s Strategic Plan 2023-2025
    • Our Team
    • TSA’s Management Committee
    • TSA’s Medical Advisory Panel
    • Our Achievements
    • Impact/Annual Reports
    • Contact Us

All the Latest News

TSA’s eNews July 2022

21 Jul 2022
newsletter

Be a part of TSC research: Biosample Repository and Natural History Database

20 Jul 2022
BiosampleRepository

Antiepileptic effect and safety profile of Rapamycin in children with TSC

14 Jul 2022
research image e1642390194340

Congratulations to Kathryn Santamaria

14 Jul 2022
Kathryn Santamaria with EPMA 22

Real-world evidence study on the long-term safety of everolimus

13 Jul 2022
52046975613 21344e140a o

TSA’s eNews June 2022

24 Jun 2022
newsletter
« Previous 1 2 3 4 … 25 26 27 28 29 30 31 32 33 … 43 44 45 46 Next »

Connect with us

TSC Discussion Group
TSA Facebook Page

  • Call or email today

  • TSA exists to support people affected by TSC. We value your input.

  • Phone: 1300 733 435 (Australia only)
    Email: [email protected]
    Address: TSA (Tuberous Sclerosis Australia)
    18 Central Road
    Beverly Hills NSW 2209
    Australia
  • Contact us

  • Become a member

  • We hope you’ve found the information on this website helpful. TSA is a small charity. We receive no on-going government funding and rely heavily on memberships to provide our services and programs.

  • If you’d like to help us continue to provide essential free information and support to everyone affected by TSC please sign up as a member today.

  • Join us today

  • Subscribe to updates

  • Stay up-to-date with TSA’s insights and updates on TSC-related research, information and news. Our regular eNews will be sent directly to your inbox making sure you never miss important information, events and developments.

  • Name(Required)
    • Acknowledgement of Country

    TSA acknowledges Aboriginal and Torres Strait Islander people as the traditional custodians of the lands on which we live and work and values their cultural knowledge, strength and resilience. We pay respect to Elders, past, present and emerging and to the Aboriginal and Torres Strait Islander people in our Community.


    Tuberous Sclerosis Australia Inc. is an incorporated association under New South Wales law. You can download and read our Constitution here. We are registered with the Australian Charities and Not-for-profits Commission (ACNC).
    Disclaimer: The information on this website is intended to provide basic information about Tuberous Sclerosis Complex (TSC). It is not intended to, and it should not, constitute medical or other advice. Readers are warned not to take any action without first seeking medical advice. The TSA Privacy Policy explains how we handle your personal information.
    Thank you to our supporters. TSA receives no ongoing government funding and relies on your generosity. All donations $2 and over are tax deductible.

    • © Tuberous Sclerosis Australia.
    • Registered Charity CC25313
    • Incorporation number Y07116-42
    • ABN 20 681 174 734
    • Site by Marlin | A Strategy, Creative, Digital Agency