Dear Friend,

You may already know a little of the challenges Oliver has faced in his life because of Tuberous Sclerosis Complex (TSC). You may have seen how our family have had more than our fair share of hospital visits and medical appointments to ensure Oliver has all the support he needs. Oliver was diagnosed with Tuberous Sclerosis Complex pre-birth when at only 28 weeks, the radiologist found lesions on his heart and so began our TSC journey.

TSC is a rare genetic condition that causes tumours to grow in vital organs of the body such as the brain, heart, lungs, kidneys, eyes and skin. He will require on going monitoring and one of our challenges is we have know idea of what the future holds. If you want to help and don’t know what to do, here’s what we would like you to do.

Please make a gift in Oliver’s honour to support all Australians living with TSC. We believe strongly in the work of Tuberous Sclerosis Australia who work towards supporting families with TSC while they work towards finding a cure.

Your contribution will help Oliver and other children with TSC have the best life possible.

How your donation helps

$50    allows us to answer a single support or information request

Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area

$200    allows an individual with TSC or their carer to attend an information event

Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.

$450    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.

Your donation will also help us to provide these services to families living with TSC:

  • Maintain this website, the only online source of TSC information for families living in Australia
  • Publishing and printing our magazine Reach Out
  • Providing phone and email support
  • Organising and hosting educational events throughout Australia
  • Advocate for improved services and treatment for families affected by TSC
  • Fund research into TSC in Australia

Our donors have also allowed us to complete these major research projects:

  • SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin

The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.

Make a donation to help children like Oliver

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We like to thank our donors publicly, including in each edition of Reach Out. However if you would prefer us not to, we can keep your donation anonymous.