Tuberous Sclerosis Australia (TSA) aims to support health professionals in providing best practice care for individuals with TSC and their families.  Detailed below are a number of resources that you may find useful.  We also invite you to join our TSC Health Professionals Network.

New diagnosis or suspected TSC

Download our information sheets for health professionals

Helping families of an unborn baby with possible Tuberous Sclerosis Complex (TSC)
Download Information Sheet (PDF)

Helping families of a child newly diagnosed with tuberous sclerosis complex (TSC)
Download Information Sheet (PDF)

Download our parachute packs to support your patients

We have developed resources specifically for families whose baby or child has a possible or confirmed TSC diagnosis. This is just one of the ways in which TSA offers support directly to families. Please provide your patient's details below if permission is granted, otherwise you may request a copy on their behalf.

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If you would like TSA to send you printed copies of any of these new diagnosis resources, please email [email protected]

All information collected by TSA and provided by you is in accordance with our Privacy Policy

Essential TSC information

Diagnostic criteria for TSC 

In 2012, international agreement was reached on clinical and genetic diagnostic criteria for TSC. Clinical features of TSC are a principal means of diagnosis but TSC may also be diagnosed via genetic testing. The criteria were updated in 2021.

Clinical surveillance and management guidelines for TSC 

The internationally agreed guidelines for the diagnosis, surveillance and management of TSC, with 2021 updates.

Learn more about TSC

Read our medical information pages

For signs and symptoms, genetics, surveillance and treatment information including information on mTOR inhibitor medicines for TSC (Sirolimus and Everolimus).

Complete the BMJ e-learning course

Update your TSC knowledge, complete this module on TSC which may be eligible for continuing education points.

Listen to our podcast for GPs and primary health care professionals

What is TSC, how is it diagnosed and why is early diagnosis and intervention so important?

Stay up to date

Join the TSC Health Professionals Network

This is a non-published list of clinicians that have made a commitment to stay up to date with best practice in the diagnosis, surveillance and management of TSC.

Subscribe to our updates

Stay up to date with the latest TSC-related research, information and news. Our regular updates will be sent directly to your inbox.

Join Listserve

The TSC Alliance in the USA invites TSC healthcare professionals to subscribe to its private listserv: [email protected] Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback.




Referral to the TSA Nurse

We welcome you to refer your patients to TSA's Nurse to answer TSC-specific questions.  If you would like to make a referral, please complete this referral form.

All information collected by TSA and provided by you is in accordance with our Privacy Policy

  • MM slash DD slash YYYY
  • Referrer's details

  • Person to be contacted

  • About the person with TSC

  • MM slash DD slash YYYY
  • Concerns or issues

  • Please submit to the TSA Nurse

    Email: [email protected] Phone:1300 733 435 (Australia only)