Tuberous Sclerosis Australia aims to support health professionals in providing best practice care for individuals with TSC and their families.
- Understand the diagnostic criteria for TSC – Vogt’s triad of learning disability, siezures and facial angiofibroma is out of date. Read about the revised diagnostic criteria for Tuberous Sclerosis endorsed at the 2012 Clinical Consensus Conference
- Use the clinical guidelines for TSC – The evidence based management guidelines include recommended surveillance on diagnosis and follow up as well as the screening tool for TSC Associated Neuropsychiatric Disorders (TAND).
- Read our medical information pages – For symptoms, surveillance and treatment information about the different systems affected by TSC, genetics and information about mTOR inhibitor medicines for TSC (Sirolimus and Everolimus).
- Complete the BMJ e-learning course – to update your TSC knowledge module on TSC which may be eligible for continuing education points in your profession
- Join the TSC Professionals Network – a non-published list of clinicians that have made a commitment to stay up to date with best practice in the diagnosis, surveillance and management of TSC.
- Join our email list – to receive monthly newsletters including TSC research news and events.
- Become a member of Tuberous Sclerosis Australia – Provide vital financial support and receive our twice-yearly magazine, Reach Out.