New online NDIS resource

TSA thanks Sanofi for agreeing to financially support the development of a new downloadable, online resource on TSC and the NDIS. 

Part one will be an information resource about TSC (Tuberous Sclerosis Complex) designed for NDIS Planners that people living with TSC and/or their carers and families can take to NDIS planning meetings. It will help NDIS Planners better understand TSC and support the needs of people living with the condition and help develop NDIS plans that are person-centred and meet the unique care needs and goals of each individual.

Part two will involve development of a carer’s impact statement template tailored for people living with TSC and their families/carers. The template will provide a structured format for carers to outline the impact of TSC on the individual’s daily life, care needs, and support requirements for submission to NDIS planners.

The resource will be collaboratively produced by TSA and members of the TSC Community during 2025. Katrina Watt, TSA’s nurse will lead development.

We know many of you in our Community have very valuable insights into the NDIS. If you are happy to be involved in helping shape this new resource by providing ideas, materials and/or reviewing drafts, please get in touch with us by emailing [email protected]