The aim of TSC talk with Kim is to share information about common issues people reach out to our Nurse Service for help with. We hope that by anonymously sharing some of these questions and answers we can better inform you about some of the shared struggles members of our TSC Community may experience.
Not surprisingly a common question I’ve been asked by our TSC Community recently is, “what is the latest information about COVID-19 vaccination?” This is not an easy question to answer. It’s a very challenging topic to keep up with, as new vaccines are getting approved, different options to get vaccinated are becoming available and our knowledge about COVID-19 continues to evolve as we have new variants of concern.
It can be difficult to provide clear information when so much is still changing. But, here at TSA, we will continue to try to provide you with as much up to date information as we can.
Considering the number of changes that have happened just recently – for example children aged 12-16 are now able to be vaccinated – I thought it might be a good idea to remind everyone of where to go to get COVID-19 vaccination information. The best site for information remains the Australian Department of Health website at COVID-19 vaccines | Australian Government Department of Health. You will find details on the different types of vaccines available (there are 3 now) and can even get help to find a clinic and make a booking.
While serious side effects of the COVID-19 vaccination are extremely unlikely, on rare occasions it does happen. Millions of people worldwide have received the vaccines with no serious side effects but you should consult with your GP or health care professionals about possible side effects for your TSC-affected person.
A current hot topic is booster shots for people who are severely immunocompromised. The Australian Technical Advisory Group on Immunisation (ATAGI) recently released a statement on the use of a 3rd primary dose (better known as a booster shot). You can find the complete document here.
People in Australia who are aged 12 and older and considered “severely immunocompromised” will now be eligible to book a booster shot. The booster shots are currently being prioritised for people who have weakened immune systems to maximise the level of immune response to be as close as possible to the general population. Examples of the groups identified include those with blood cancers or those having treatment with chemotherapy or long term dialysis. You can find the full list here. While currently there is no advice specifically for people with TSC, we do know that TSC may not be the only health condition that someone has, so it is important to speak to your health care professionals to provide the best advice in your individual circumstances.
The one thing that we know for sure is that the information on COVID-19 vaccines will continue to change as our knowledge evolves. The best advice I can give you is to keep an eye on our TSA website and also on that Australian Department of Health website. And, if you are looking for specific information as to what is happening in your state here are some useful links:
Victoria: COVID-19 vaccines | Coronavirus Victoria
South Australia: COVID-19 Vaccine | SA Health
Please reach out to me anytime with any TSC or COVID-19 vaccine related questions you may have.
1300 733 435
TSA’s nurse service is funded by a Federal Government grant as part of the Patient Pathways Pilot Program.