TSA's Telehealth Nurse - Tuberous Sclerosis Australia

TSA’s Telehealth Nurse

This is a free, confidential service providing TSC information and links to practical support. It is run by Katrina, a qualified nurse, supported by members of our health professionals network and regional volunteers who know what it is like to live with TSC.

You can book a time to talk to Katrina by calling 1300 733 435 (Australia only) or by completing the online booking form below. Katrina can help you with any questions and/or concerns you may have about TSC including:

emotional support if you or someone you care about has TSC
how to manage life with TSC
questions you may have about TSC, including tests and medical procedures
how to find other organisations and resources that can help you.

We value your personal and health information and we will keep this confidential. For more details please see our privacy policy.

Please note: If you are a health care professional wishing to refer a patient to TSA’s Nurse, please go to: https://tsa.org.au/health-professional/

Please book me a time to talk with Katrina

To book a time to speak with the TSA Nurse, please complete the form below.

Name*
Best contact number*
Email address*
Postal address
In which state do you live?*
Are you calling about?*
Does this person have a confirmed TSC diagnosis?
- Yes
- No
What days and times suit you best for a call?
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What days and times suit you best for a call?
Please tick below if you need a language interpreter for the call - we will be able to book an interpreter through the Translating and Interpreting Service (TIS)
- Interpreter needed
Are you happy for TSA to send you its regular enewsletter so that you can keep up to date on TSC-related issues?
- Yes
- No
Is there any other important information you would like the nurse to know at this stage?

All information collected by TSA and provided by you is in accordance with our Privacy Policy https://tsa.org.au/about-us/policies/

If you are in crisis and need urgent help

If you need immediate assistance, the following organisations may be able to help:

Lifeline Australia Phone 13 11 14

Suicide Call Back Service Phone 1300 659 467 https://www.suicidecallbackservice.org.au/

MensLine Australia Phone 1300 78 99 78

Kids Helpline Phone 1800 55 1800 https://kidshelpline.com.au/

Please note that the TSA Nurse is only available to people living in Australia. However, there are TSC organisations in many countries around the world. We encourage you to find a TSC organisation in your country through TSC International. In New Zealand please contact Tuberous Sclerosis Complex New Zealand.

The TSA Nurse service is able to provide general information and advice on TSC. The information provided is not a substitute for professional health care. You should always seek your own medical guidance from your doctor or health professional and not disregard professional advice or delay seeking assistance because of any information received from the TSA Nurse.

TSA’s nurse is a Patient Pathways Telehealth Nurse, an initiative funded by the Federal Department of Health and developed by the Centre for Community-Driven Research.

We encourage you - when you are ready - to contact the TSA Nurse via this website or by calling 1300 733 435.

This is a confidential service where you can speak to a qualified nurse and ask questions about anything to do with tuberous sclerosis complex (TSC).

Back to Understanding tuberous sclerosis complex (TSC)