This is a free, confidential information and support service which provides TSC information and links to practical support. It is run by Kim, a qualified nurse, supported by members of our health professionals network and regional volunteers who know what it is like to live with TSC.
Kim is available on weekday evenings and also at some other times outside of this. You can book a time to talk with Kim by phoning 1300 733 435 (Australia only) or by completing the online booking form below.
Kim can help you with any questions and/or concerns you may have including:
- emotional support if you or someone you care about has TSC
- how to manage life with TSC
- questions you may have about TSC, including about tests and medical procedures
- how to find other organisations and resources that can help you in your life with TSC.
Please note: If you are a TSC health professional wishing to refer a patient to TSA’s Nurse, please go to: https://tsa.org.au/health-professional/
Please book me a time
To book a time to speak with Kim, the TSA Nurse, please complete the form below. We will confirm a time for your call by email.
If you are in crisis and need urgent help
If you need immediate assistance, the following organisations may be able to help:
Lifeline Australia Phone 13 11 14
Suicide Call Back Service Phone 1300 659 467 https://www.suicidecallbackservice.org.au/
MensLine Australia Phone 1300 78 99 78
Kids Helpline Phone 1800 55 1800 https://kidshelpline.com.au/
Please note that the TSA Nurse is only available to people living in Australia. However, there are TSC organisations in many countries around the world. We encourage you to find a TSC organisation in your country through TSC International. In New Zealand please contact Tuberous Sclerosis Complex New Zealand.
The TSA Nurse service is able to provide general information and advice on TSC. The information provided is not a substitute for professional health care. You should always seek your own medical guidance from your doctor or health professional and not disregard professional advice or delay seeking assistance because of any information received from the TSA Nurse.
TSA’s nurse is a Patient Pathways Telehealth Nurse, an initiative funded by the Federal Department of Health and developed by the Centre for Community-Driven Research.