Clare’s Story I am really proud to present this series of sibling stories for this issue of Reach Out. It has been an honour to interview each sibling and listen to their stories, their strength and their kindness. Each day … Read More
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Oscar’s Story As told by his mum Kate in conversation with TSA volunteer Todor Arsov “Oscar was diagnosed with a metastatic renal cell carcinoma and the alarm bells went on! We were quite shocked … It sounded like there wasn’t … Read More
Not everyone with TSC will have a disability. But for many that do their needs are complex and the NDIS brings major change to the way that disability services are funded and provided in most parts of Australia. At the … Read More
Read our information page on mTOR inhibitor medicines used in TSC Ava’s experience with mTOR inhibitors Joelle, Ava’s Mum, Western Australia Ava is ten and has tuberous sclerosis complex (TSC). She loves gymnastics, drama and horse riding and is generally … Read More
a team of health care specialists who are here to assist you to take control of your health before you make the move over to the adult health system. Trapeze is the specialist transition service for The Sydney Children’s Hospitals … Read More
Read about the financial assistance available to help people with TSC For us not much is available. We only have access to the carers allowance and it doesn’t cover a lot. Our daughter isn’t “bad enough” to get the carers … Read More
A project of Australia Post,Go Digi is a national digital literacy project, including guides on various topics and face to face training. One guide is specific to health and may be especially useful to people with TSC, How to find … Read More
Australia’s first magazine for children with special needs! Source Kids is a free magazine distributed throughout Australia and is also available online. The magazine is a ‘source’ of information about education, health and nutrition, travel, sport, safety, therapy, technology, grants … Read More
Ability Links is a new service in NSW for individuals with a disability and their carers. It provides people with a locally based first point of contact to support people to access supports and services in their local communities.
The Centre for Genetics Education provides high quality information on genetics, including genetics disorders. The Centre is a NSW state-wide education service dedicated to preparing health professionals who are non-genetics trained with the skills and knowledge to manage the impact … Read More