It’s national carers week and the Royal Children’s Hospital, Murdoch Children’s Research Institute, Australian Genomics Genetic Epilepsy Team Australia (GETA) and The Epilepsy Foundation are working together on a research project to find out more about people’s experiences of caring for a child with complex needs.
Your feedback will help TSA and the rare disease sector advocate for improvements to the Australian healthcare system and for a greater understanding of rare and genetic epilepsies. All family members and carers of children living with TSC are eligible and encouraged to participate.
More information about the research can be found in the Poster
You can complete the survey by clicking here (the survey will appear when you press submit)
If you would like further information or have questions, please contact the study team:
Katherine Howell: [email protected]
Stephanie Best: [email protected]