Join a focus group and help improve care for people living with TSC

 Join a Focus Group & Help Improve Care for People with TSC!

Do you or someone you care for live with TSC? The COS4TAND team is inviting individuals living with TSC and caregivers to take part in a virtual focus group or interview to help identify what outcomes matter most for people with TSC.

This research is part of the Anya’s Accelerator “COS4TAND” project, which aims to improve TSC care by better defining, monitoring, and measuring TAND symptoms. Your input will help create tools that support earlier detection, more personalised care, and improved quality of life for people living with TSC.

 What to expect:
• Online sessions via Microsoft Teams
• 30 minutes (children) or up to 1 hour (parents/caregivers)
• Sessions in December 2025 & January 2026
• $20 gift card as a thank-you for participating

 Who can participate?
• Individuals with TSC ages 8–12 (with an adult)
• Individuals with TSC ages 13–17 (with an adult)
• Adults with TSC
• Caregivers of someone with TSC

 Interested?

Please use this link to sign up, or email [email protected]. Feel free to email if you have any questions!