The success of our work relies on the generosity of your donations, fundraising and corporate support. We receive no ongoing government funding.

How your donation helps

$35    allows us to answer a single support or information request

Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area

$125    allows an individual with TSC or their carer to attend an information event

Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.

$450    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.

Our next goal is to employ a TSC Advisor. Find out more about this goal.

Your donation will also help us to provide these services to families living with TSC:

  • Maintain this website, the only online source of TSC information for families living in Australia
  • Publishing and printing our magazine Reach Out
  • Providing phone and email support
  • Organising and hosting educational events throughout Australia
  • Advocate for improved services and treatment for families affected by TSC
  • Fund research into TSC in Australia

Our donors have also allowed us to complete these major research projects:

  • SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin

The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.

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We like to thank our donors publicly, including in each edition of Reach Out. However if you would prefer us not to, we can keep your donation anonymous.

Donations are non-refundable contributions to Tuberous Sclerosis Australia Incorporated. Please contact us if you require more information.


Other ways you can help families living with Tuberous Sclerosis

Become a member of TSA

Our members make an annual financial contribution and have a say in how Tuberous Sclerosis Australia is run. Membership is open to anyone and includes hundreds of families and health professionals around Australia.


You can make a contribution through donating your time and expertise to TSA. Short and long term opportunities available.

Fundraise for TSA

We’re so lucky to have people willing to walk, run, bake, shave and much more for TSA. Join in an activity run by someone else or come up with your own activity.

Leave a bequest

Leaving a gift in your will can make a lasting difference to people affected by Tuberous Sclerosis.