On this day, thousands of individuals and families affected by Tuberous Sclerosis Complex (TSC) will join together to increase public awareness of the rare disease and share their stories of hope for the future. Global Awareness Day is an initiative of Tuberous Sclerosis International, the worldwide association of Tuberous Sclerosis Complex Associations. The theme this year is ‘Where in the world is TSC?’. Here are some ways that you can get involved.
Share your photo
Tuberous Sclerosis affects approximately 1 million people worldwide. Where in the Word is TSC? offers you the chance to help spread the word by showing people affected by TSC around the world. You can take a photo of yourself to submit to an online gallery. Submit your photo today:www.tscglobalday.org
View the gallery, including pictures from TSC families throughout Australia and New Zealand:www.tscglobalday.org/gallery.aspx
Meet others affected by Tuberous Sclerosis on May 19
On Sunday 19th May, ATSS volunteers will host TSC Awareness Picnics in 8 locations around Australia and New Zealand. Come along to meet others affected by Tuberous Sclerosis or to reconnect with people you have met before.
All events are informal, but please do RSVP to let our volunteers know to look out for you and so that they can contact you if plans change due to bad weather.
Details for all of the picnics