» » » May 15 is TSC Global Awareness Day

May 15 is TSC Global Awareness Day

Category: Events | 0

On this day, thousands of individuals and families affected by Tuberous Sclerosis Complex (TSC) will join together to increase public awareness of the rare disease and share their stories of hope for the future. Global Awareness Day is an initiative of Tuberous Sclerosis International, the worldwide association of Tuberous Sclerosis Complex Associations. The theme this year is ‘Where in the world is TSC?’. Here are some ways that you can get involved.

Where in the world is TSC?

Share your photo

uploadedimages_Abby 2Tuberous Sclerosis affects approximately 1 million people worldwide. Where in the Word is TSC? offers you the chance to help spread the word by showing people affected by TSC around the world. You can take a photo of yourself to submit to an online gallery. Submit your photo today:


View the gallery, including pictures from TSC families throughout Australia and New Zealand:

Picnic Day

Meet others affected by Tuberous Sclerosis on May 19

00090013On Sunday 19th May, ATSS volunteers will host TSC Awareness Picnics in 8 locations around Australia and New Zealand. Come along to meet others affected by Tuberous Sclerosis or to reconnect with people you have met before.

All events are informal, but please do RSVP to let our volunteers know to look out for you and so that they can contact you if plans change due to bad weather.

Details for all of the picnics

Media Campaign
Some generous TSC families are sharing their stories with their local community during May. We’ll be updating this page with the media coverage they get.

Balcktown Advocate

Leave a Reply