You are invited to our TSC Community Virtual Conference.

Saturday 15 May 1pm-5pm AEST and Sunday 16 May 9am-12.30pm AEST (online)

The conference provides a unique opportunity to hear from and ask questions of expert TSC health professionals, including international keynote speaker Dr Darcy Krueger (pictured), Paediatric Neurologist at Cincinnati Children’s Hospital.

See the full program here: TSC Community Virtual Conference 2021 Program for WEB

This is a must attend event for everyone affected by TSC, including adults, families and carers.

The event fee is just AU$45 and covers everyone in your household. Registration is NOW OPEN.

Register now

Thanks to the Commonwealth Department of Social Services some funding is available to assist attendees in Australia with disability (and up to one support person) to participate in this event.  Financial assistance is also available to help people in New Zealand attend this event.   Please see below for more details.

What will be discussed at the event?

The 2021 conference will include:

  • An overview of what we now know about TSC from international keynote speaker Dr Darcy Krueger from Cincinnati Children’s Hospital Medical Center
  • Epilepsy and TSC – three of Australia’s expert TSC neurologists will discuss clinical management and treatment, including what we now know about vigabatrin and vision
  • Skin issues in TSC including an update on the latest angiofiboma research trials in Australia and New Zealand
  • AMLS and the new horizon in treating and managing TSC-related kidney issues
  • TSC surveillance and digital delivery of healthcare in the COVID era

Find our more here: TSC Community Virtual Conference 2021 Program for WEB

This is the first TSC-specific conference held in Australia since 2015.

Most sessions are 20-30 minutes in length with plenty of refreshment breaks in between each session. 

All sessions will be held online and will include time for your questions which can be submitted in advance as well as during the sessions.

There will also be time to make connections with other families living with the challenges of TSC which we know is one of the highlights of this event.

Who is organising this event?

The conference is hosted by TSA.  Development of the program has been done in consultation with an expert steering committee who have kindly volunteered their time and expertise.

TSA thanks the members of our conference steering committee for helping us to develop the conference program:

  • Dr Kate Riney (Paediatric Neurologist & Epileptologist and Lead Clinician, Queensland Children’s Hospital, Brisbane, Queensland)
  • Dr Katherine Howell (Paediatric Neurologist & Epileptologist, Royal Children’s Hospital, Melbourne, Victoria)
  • Dr David Mowat (Clinical Geneticist and TSC Clinic Co-director, Sydney Children’s Hospital, Randwick, New South Wales)
  • Mark Francis (Nurse Consultant, Neurology and Clinical Neurophysiology, Adelaide Women’s and Children’s Hospital, South Australia).
Can I get financial assistance to attend the event?

IN AUSTRALIA
TSA is a recipient of funding from the Commonwealth Department of Social Services to assist individuals in Australia who live with Tuberous Sclerosis Complex and up to one support person to participate in this event. This grant funding will cover the event fee for eligible attendees.

You are eligible for this funding if:

  • you have TSC yourself or
  • you are the support person for someone who has TSC who will attending the conference with you

To take advantage of this funding please tick the relevant box on the registration form.  Funding will be awarded on a first come, first served basis until the budget has been fully allocated, so please register as soon as you can. 

NOTE: A listing of recipients of NDCI funding will be submitted to the Department of Social Services and may be audited.  It is your responsibility to ensure you are eligible for this funding and that not only do you register but that you also attend the event.

IN NEW ZEALAND
If you require financial assistance in order to participate in this event, TSCNZ is generously sponsoring people affected by TSC in New Zealand to attend this event. If you live in New Zealand and would like to take advantage of this sponsorship please tick the relevant box on the registration form. 

I get all my information about TSC from my doctors and from the internet. Why should I attend?

The event is a chance to hear from international TSC expert health professionals and also learn about the experiences of other people who are living with TSC.  

We’re yet to hear from an attendee at one of our educational events that regrets attending. 

How long does the event go for?

The event runs from 1.00pm-5.00pm AEST on Saturday and from 9.00am-12.30pm AEST on Sunday (online). 

Most sessions are 20-30 minutes in length with plenty of refreshment breaks. 

Can my family members or other interested people participate?

Absolutely. We know that many people are involved in supporting a person with TSC and we welcome anyone who would like to participate in the event.  The event fee covers you and everyone in your household attending the event. 

TSA’s Community and Health Professionals Virtual Conference 2021 has been made possible thanks to the generosity of the following sponsors:

GW Pharmaceuticals, UCB Pharmaceuticals and The Ian Potter Foundation

 

 

 

 

TSA would also like to acknowledge the generous support of the Commonwealth Department of Social Services.

Important note: TSA’s conference and activities are not in any way influenced by the commercial interests of the for-profit companies we work with. We welcome you to read more about our policies on working with pharmaceutical companies at https://tsa.org.au/about-us/policies/