Community Connect, Melbourne, 3 June

An event for adults living with TSC (Tuberous Sclerosis Complex), companions and carers of adults living with TSC, and adults living with LAM (Lymphangioleiomyomatosis)

About this event: Community Connect is a great opportunity to meet people living with similar daily challenges and to share your thoughts and experiences. You will also hear from expert health care professionals and have the opportunity to ask them your questions. Registration is essential.

Where: This national in person event will be held at the Library at the Dock, 107 Victoria Harbour Promenade, Docklands, Melbourne.

When: Saturday 3rd June 2023.

Time: Community Connect runs from 10am to 5pm for adults living with TSC, companions and carers of adults living with TSC.

For adults living with non-TSC LAM we invite you to join us from 12:15pm to 5pm.

A light lunch is included for all attendees. There will also be social drinks (not included in the registration fee) at The Four Points by Sheraton Hotel at the close of the event.

Cost: Thanks to government sponsorship under the National Disability Conference Incentive ( NDCI) grant program, registration fees are covered for anyone living with TSC and one person accompanying them to the event. Some financial assistance with travel costs and overnight accommodation may also be possible, particularly for people travelling from outside of Melbourne to attend the event.

Living with LAM is generously subsidising the registration fee for members of its LAM Community.

More information

Where and when

Library at the Dock, 107 Victoria Harbour Promenade, Docklands, Melbourne, VIC

Saturday 3rd June 2023

Community Connect will run from 10am to 5pm for adults living with TSC, their companions and carers of adults living with TSC.

For adults living with non-TSC LAM, Community Connect is a half day event from 12.15pm to 5pm.

A light lunch is included for all attendees. There will be time for questions and refreshment breaks.

We also hope attendees will join us for social drinks (costs not included) at the Four Points by Sheraton Hotel at the close of the event.

Library at the Dock
What will be discussed?

In the morning session, Dr Matt Sypek, Nephrologist, Royal Melbourne Hospital will talk about some of the kidney issues that can impact adults living with TSC.

He will discuss and answer your questions on:

  • What are the issues and how do they present?
  • What can you do to manage or try to prevent them?
  • Latest research pathways

There will also be discussion of health care provision for adults living with TSC and what could be done better.

After lunch, Dr Helen Whitford, Respiratory Physician, The Alfred Hospital, Melbourne will talk about LAM.

Helen will talk about and answer questions on:

  • Diagnosis of LAM
  • Treatment options, vaccinations and management options
  • New research pathways

The remainder of the afternoon will include discussion of strategies for managing your condition with inclusion of some practical ideas.

How can I get financial assistance?

Thanks to government sponsorship under that NDCI grant program, the registration fee of $95 is covered for anyone living with TSC and one person accompanying them to the event. Some assistance with overnight accommodation and travel costs may also be possible, particularly for people who are travelling from outside of Melbourne to attend the event.

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To take advantage of this funding simply tick the relevant box on the registration form.  You can also use this form to find out about support with travel and accommodation costs.

Living with LAM is generously subsidising half of the $50 registration fee for members of its LAM Community. To take advantage of this funding simply tick the relevant box on the registration form. 

Can my family members participate?

Absolutely. We know that many people are involved in supporting a person living with a health condition and we welcome anyone who would like to participate in the event.   

Who is organising and sponsoring this event?

The conference is co-hosted by TSA and Living with LAM and supported by our amazing expert TSC health care professionals.

Community Connect funding for people living with TSC has been made possible thanks to the generosity of the following sponsor:

DSS logo

If you have any questions or need further information, please email [email protected]

Community Connect 1
Library at the Dock
Library at the Dock, Melbourne
Dr Matt Sypek
Dr Matt Sypek
Dr Helen Whitford cropped
Dr Helen Whitford