One of the largest international scientific research programs on epilepsy has reached its end. The EPISTOP project proved that preventive treatment decreased the risk and severity of epilepsy. The results of the EPISTOP research will be used to develop a … Read More
Kim Hoban, Kobi’s grandmother, Melbourne I want to share this success with the TSC community as it may help other kids that are non-verbal and their carers who are looking for a communication device. I am the sole carer of … Read More
TAND stands for TSC Associated Neuropsychiatric Disorders and refers to the wide range of cognitive, behavioural and mental health challenges that people with TSC are at risk of. For many people with TSC the TAND aspects of TSC are of greater concern to them and their families than the medical aspects of TSC.
At the 2013 ATSS Family Conference, many sessions were recorded. The following are available on DVD and online: Professor Petrus de Vries, speaking about how TSC can affect behaviour, cognition, learning and mental health. Petrus is a world-leading researcher into … Read More
The academic journal, Annals of Neurology, has recently accepted a paper by researchers at Texas Children’s Hospital, Baylor College of Medicine and Cincinnati Children’s Hospital. This small study shows promising results in a small number of TSC patients being treated … Read More
In March, Sydney mother of two, Leanne Park, was grateful to receive a helping hand from staff volunteers from NetApp. Leanne’s son Luke has Tuberous Sclerosis and were one of the stars in ATSS’s 2007 DVD production ‘Tuberous Sclerosis: You … Read More
TS Alliance has produced these two videos which include Dr Darcy Krueger discussing both sleep and anxiety in TSC with Brooke Simsa, who has Tuberous Sclerosis. In addition, the “Healthy Body, Healthy Mind” documentary series has produced an episode about … Read More