In this issue we encourage you to show your thanks to a health care professional who has gone ‘above and beyond’ for your family and offer an opportunity for you to get involved in shining a light on TSC
A new Rare Care Centre will be established at Perth Children’s Hospital to provide a holistic model of care for children with rare and undiagnosed diseases. The Centre will deliver improved awareness and early identification of children with potential rare … Read More
Today is Rare Disease Day – a globally coordinated day to raise awareness of rare disease and its impact on those with a rare disease, their families and friends. We hope everyone in our TSC Community will support us today … Read More
TSA’s August newsletter is now available to read online. In this month’s issue, you can find out about two new Zoom Education Events in September. We also recommend saving 20 and 21 November for our TAND+ Conference, which will be … Read More
TSA’s June newsletter is now available to read online. In this months edition, you can learn more about TSA’s end of financial year appeal. It’s also time to join or renew as a TSA member. This will entitle you to attend our Zoom Education Events for free, the next one is coming up on 27 July. You also still have a few days to say thanks to the health professional you’d like to see win the Elizabeth Pinkerton Memorial Award this year.
Many families with TSC struggle with challenging behaviours. This study aims to understand not only which behaviours are associated with Tuberous Sclerosis Complex, but also which behaviours are of most concern to parents and caregivers. Please see the flyer for more … Read More