You can now find a printable pdf of both the updated TSC diagnostic criteria and the updated TSC surveillance and management guidelines on our website, by clicking here.
TSA’s August newsletter is now available to read online. In this month’s issue, you can find out about two new Zoom Education Events in September. We also recommend saving 20 and 21 November for our TAND+ Conference, which will be … Read More
TSA’s June newsletter is now available to read online. In this months edition, you can learn more about TSA’s end of financial year appeal. It’s also time to join or renew as a TSA member. This will entitle you to attend our Zoom Education Events for free, the next one is coming up on 27 July. You also still have a few days to say thanks to the health professional you’d like to see win the Elizabeth Pinkerton Memorial Award this year.
Many families with TSC struggle with challenging behaviours. This study aims to understand not only which behaviours are associated with Tuberous Sclerosis Complex, but also which behaviours are of most concern to parents and caregivers. Please see the flyer for more … Read More
In each edition of Reach Out, we publish the collective wisdom of TSC families from around Australia and New Zealand on a particular topic in a section called ‘Just between us’. You can read previous articles on topics such as … Read More
We know that many people who have TSC, or care for someone with TSC use social media to connect with others in similar situation. We have published a new information page to help people who use Facebook for information and … Read More
Recently several new information resources have emerged on TSC and the skin. Although many medical professionals view the skin signs of TSC as a minor concern, it is often reported as significant by many patients and their families. You can … Read More