SAVE THE DATE! This year on 15 & 16 May, TSA will host a virtual conference for our TSC Community and Health Professionals. Please block this date in your diary now and we will share more details very soon.
Many families with TSC struggle with challenging behaviours. This study aims to understand not only which behaviours are associated with Tuberous Sclerosis Complex, but also which behaviours are of most concern to parents and caregivers. Please see the flyer for more … Read More
In each edition of Reach Out, we publish the collective wisdom of TSC families from around Australia and New Zealand on a particular topic in a section called ‘Just between us’. You can read previous articles on topics such as … Read More
We know that many people who have TSC, or care for someone with TSC use social media to connect with others in similar situation. We have published a new information page to help people who use Facebook for information and … Read More
Recently several new information resources have emerged on TSC and the skin. Although many medical professionals view the skin signs of TSC as a minor concern, it is often reported as significant by many patients and their families. You can … Read More
The 2014 Annual General Meeting (AGM) of The Australasian Tuberous Sclerosis Society Inc will be held on August 17th at 12:30pm in Sydney. You can register to attend the AGM here. One of the items of business in this meeting … Read More
I was fortunate to be funded through TSC International to attend the recent TSC World Conference held in the USA. I have returned from this trip with lots of great information, some strengthened relationships and renewed inspiration for ways that we can continue our work to ensure that people with TSC in Australia have access to the best information, treatment and support.
The Elizabeth Pinkerton Memorial award is given annually by ATSS to a health professional to recognise their efforts to improve the lives of TSC affected families in Australasia. Elizabeth (Lizzie) Pinkerton (1984 – 2010) had Tuberous Sclerosis Complex and Polycystic … Read More
Are you affected by TSC or caring for someone with TSC? Are you passionate about making sure families like yours have access to accurate information about TSC that is also easy to understand? What will the volunteer role involve? All … Read More
I used genetic testing because my sister had TSC and I wanted to start a family of my own. Testing gave myself and my husband the re-assurance that we needed that our children wouldn’t have a higher risk of Tuberous … Read More