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TSA’s March 2023 e-newsletter is now available. In this issue details for an upcoming TSC event in Melbourne and information on new clinical trials now recruiting.

Researchers at The Royal Children’s Hospital in Melbourne are conducting a new medical research study exploring the potential benefits of medicinal cannabis for managing behavioural symptoms in children with developmental disabilities. Children aged 6 to 18 years with an intellectual … Read More

Rare Disease Day is an international day that raises awareness of rare diseases and the importance of equity, diagnosis, treatments and inclusion. On Rare Disease Day 2023, UTS in Sydney is holding a morning tea to ‘Meet the Researchers’ who … Read More

Two years ago, we created a series of guides called In Safe Hands. Our goal with this was for families to feel they can trust their child with TSC will be ‘in safe hands’ during their school years and that … Read More

We are delighted to let you know that our friends at Sydney Children’s Hospital in Randwick are now recruiting for the TSC-STEPS research trial (formerly known as STOP2). The purpose of this ground-breaking research is to learn more about the … Read More

We are thrilled to share we raised over $25,000 to help people living with TSC in Australia. The funds raised will directly help people affected by TSC to access ground-breaking new treatments and research that are taking us closer to a cure for this devastating disease.

TSA’s Annual General Meeting (AGM) will be held via Zoom on Saturday 5 November at 2pm AEDT

In this month’s issue, read up on the results of the TSA survey and take a look at the line up for Comedy for a Cure 2022!

Our volunteer regional contacts provide peer support over the phone and in their local areas. They work with local families to share information and experiences.