TSC Professionals meet in Melbourne

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In October 2014 TSC expert clinicians from around Australia met in Melbourne to discuss management of TSC and collaborate on projects that will improve care for people with TSC. Tuberous Sclerosis Australia was represented by Debbie Crosby (President) and Clare … Read More

#IAMTSC awareness campaign

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The Tuberous Sclerosis Alliance, our sister organisation in the United States, have developed the #IAMTSC public awareness campaign – aiming to reach members of the general public to explain Tuberous Sclerosis, the importance of TSC research and the stories of … Read More

Updates on the skin and TSC

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Recently several new information resources have emerged on TSC and the skin. Although many medical professionals view the skin signs of TSC as a minor concern, it is often reported as significant by many patients and their families. You can … Read More

Bringing home some oversized luggage: Inspiration and a long to-do list

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I was fortunate to be funded through TSC International to attend the recent TSC World Conference held in the USA. I have returned from this trip with lots of great information, some strengthened relationships and renewed inspiration for ways that we can continue our work to ensure that people with TSC in Australia have access to the best information, treatment and support.

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