Dr Kate Riney and the team at Queensland Children’s Hospital are currently recruiting patients for a formal phase II/III trial of topical rapamycin (sirolimus) for facial angiofibromas. Some funding for interstate travel is available, making this trial available for eligible … Read More
On behalf of our staff and management committee, we thank everyone who completed our survey. The aim of this survey was to find out more about you, our TSC community. We had an excellent response and your feedback will help our planning for 2020.
You may have recently read Oskar’s story in our Christmas Appeal. We are thrilled to share it has inspired a $5,000 donation. Heartfelt thanks to the team at Kerfoot Pty Ltd for your exceptionally generous Christmas gift. Oskar’s dad, Ryan … Read More
Everyone who completed TSA’s 2019 survey went into the draw for a chance to win one of two $100 gift vouchers for Westfield. Congratulations to our winners Nicole Stone in Western Australia and Rob Rossano in New South Wales. Thank … Read More
Thanks to everyone who has already completed TSA’s 2019 survey. This is the last week to give us your feedback. Please follow this link to fill out the survey: https://www.surveymonkey.com/r/TSASurvey2019 Everyone who participates in this survey has the opportunity to go into the prize draw to … Read More
Read all the latest news and updates from TSA including how to have your say in our latest survey, save the date for our 2020 TSC Connect Conference and much more
Rare Voices Australia (RVA) has just launched a new report, Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases. The report highlights significant unmet need and a need for the health and disability sectors to collaborate to … Read More
The October 2019 edition of Reach Out is now available to read online. This issue’s contents include: Welcome Kim, TSA’s new Nurse The Value of Connections Research News If you would like to receive Reach Out by post, sign up … Read More
TSA’s Annual Report for 2019 is now available. The report charts our activities and successes this year which have been made possible thanks to the support of our fantastic TSC community. In response to feedback from our members about good … Read More
You have the chance to win an amazing 8-night accommodation package at the luxury Alamanda resort in Palm Cove.