Welcome to TSC talk with Kim which aims to share information about common issues our TSC Community reach out to our Nurse Service seeking help for. We hope that by anonymously sharing some of these questions and answers we can better inform you about some of the shared struggles our TSC Community may experience.
If you are a teenager living with TSC or the parent/carer of a child with TSC who is about to reach their teenage years, you might want to start thinking about planning the transition from child to adult care. In … Read More
It’s national carers week and the Royal Children’s Hospital, Murdoch Children’s Research Institute, Australian Genomics Genetic Epilepsy Team Australia (GETA) and The Epilepsy Foundation are working together on a research project to find out more about people’s experiences of caring … Read More
The international TSC surveillance guidelines recommend magnetic resonance imaging (MRI) of the abdomen to check for possible renal angiomyolipomas (AMLs) or cysts. In Australia, the high out of pocket costs of an MRI make it difficult for many people with … Read More
SATURDAY 20 NOVEMBER 2021. The conference will feature a 3-hour virtual event, accessed via Zoom for everyone around Australia. There will also be a full day face-to-face event in Perth, WA. The virtual event is an opportunity to find out … Read More