TSA’s new telehealth nurse
We are very excited to announce that Kim Kerin-Ayres will be joining TSA as our new telehealth nurse.
Can we predict which children with TSC are more likely to develop autism?
A recently published study from the global EPISTOP study suggests that we can use developmental assessments of babies as young as six months old to predict which will go on to be diagnosed with autism spectrum disorder (ASD).
Lizzie’s Lunch is a SELL OUT
We hope you have already purchased your tickets, as we’re delighted to report that Lizzie’s Lunch is now a SELL OUT. We look forward to seeing everyone on Sunday at this fabulous fundraiser event.
Positive Phase 3 Trial Results for EPIDIOLEX®
GW Pharmaceuticals has announced positive top-line results of a Phase 3 clinical trial of EPIDIOLEX® (cannabidiol or CBD) CV in the treatment of seizures associated with Tuberous Sclerosis Complex (TSC). This is exciting news and a step further along the … Read More
Nominations for the 2019 Elizabeth Pinkerton Memorial Award
The Elizabeth Pinkerton Memorial Award is presented annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts in improving the lives of TSC-affected people and their families in Australia. TSA is now pleased to seek nominations for … Read More
TSC Connect: Brisbane Saturday 25 May 2019
You are invited to join TSA at our very first Connect event for adults living with TSC. The event will include TSC expert speakers, a chance to meet and connect with others living with TSC and an opportunity to discuss what further support … Read More
Reach Out, April 2019
The April 2019 edition of Reach Out is now available to read online. This issue’s contents include: Stories from TSC families about their experiences with a new diagnosis of TSC Welcoming TSA’s new General Manager Invitation to join TSA at … Read More
Nominate a health professional for the Elizabeth Pinkerton Memorial Award
The Elizabeth Pinkerton Memorial award is given annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts to improve the lives of TSC affected people and their families in Australia. Elizabeth (Lizzie) Pinkerton (1984 – 2010) had … Read More
Lizzie’s Lunch tickets now on sale
Please join us for the 6th annual Lizzie’s Lunch. This year we have locked in a celebrity MC to join us – buy your tickets now so you don’t miss out.
TSA Telehealth Nurse
It was announced today that TSA is one of 11 patient organisations that will receive funding support for a part-time telehealth nurse under the Patient Pathways program developed by the Centre for Community-Driven Research (CCDR). This pilot project is intended … Read More