Dr Orli Wargon, a paediatric dermatologist at Sydney Children’s Hospital, is the recipient of the 2018 Elizabeth Pinkerton Memorial Award. This award is given annually by Tuberous Sclerosis Australia to a health professional in recognition of their efforts to improve … Read More
At the next annual general meeting (AGM) of Tuberous Sclerosis Australia Inc., there will be several changes to TSA’s constitution proposed. These are a result of a review of our governance practices by the TSA. This was previously advised in … Read More
TSC Associated Neuropsychiatric Disorders: including learning, behaviour, autism and anxiety
These educational events are for people with TSC, their family members and interested health professionals. TSA is also working with our TSC Professionals Network members to hold events specifically for health professionals to increase their understanding of TAND.
Planned educational events in 2018:
ADELAIDE 26 AUGUST
BRISBANE 8 & 9 SEPTEMBER
SYDNEY 22 SEPTEMBER
We are pleased to share news that Everolimus (Afinitor) for epilepsy has been given a positive recommendation by the pharmaceutical benefits advisory committee (PBAC). This is a recommendation to the Federal Health Minister to add this medicine to the pharmaceutical … Read More
Tuberous Sclerosis Australia is proud to be participating in The Growth Project – a one-year leadership development program that brings together leaders of emerging charities with business leaders so that they can share and learn from their previous experience, grow individually and have … Read More
The Elizabeth Pinkerton Memorial award is given annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts to improve the lives of TSC affected people and their families in Australia. Elizabeth (Lizzie) Pinkerton (1984 – 2010) had … Read More
The April 2018 edition of Reach Out is now available to read online. This issue’s contents include: Powerful stories from siblings Our 2018 back to school gallery Celebrating our fundraisers If you would like to receive Reach Out by post, … Read More
TSA aims to raise $10,000 to give hope to newly diagnosed families through our Christmas Appeal.
Can you help children like Greta and her family?
Our goal is to improve the new diagnosis journey for every one of the babies born tomorrow with TSC. We can’t take their devastating disease away, but we can make sure they get access to life changing early intervention, the right tests, the best possible treatments, and to the experts in the field. Please donate now and give hope this Christmas to families devastated by a TSC diagnosis.
Donate now www.tsa.org.au/help/giftofhope
In December, the Pharmaceutical Benefits Advisory Committee (PBAC) will consider an application from Novartis for Everolimus/Afinitor to be listed on the Pharmaceutical Benefits Scheme (PBS) for people with TSC who are experiencing seizures that do not respond well to available … Read More