The Elizabeth Pinkerton Memorial award is given annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts to improve the lives of TSC affected people and their families in Australia. Nominations for the 2020 Elizabeth Pinkerton Memorial … Read More
Unless you or your child is acutely unwell, we encourage you to talk to your doctor about the implications of COVID-19 specific to your individual circumstances. If you or your child is acutely unwell call 000 for emergency assistance. The most up-to-date and recommended links and sources of more general health information are detailed below
Having TSC does not make you more likely than anyone else to catch coronavirus, and it does not necessarily mean that you are at greater risk of developing severe symptoms.
Unfortunately, in recognition of the evolving situation and the risks stemming from the Coronavirus pandemic (COVID-19), we have made the disappointing but necessary decision to cancel the TSC Conference due to take place in Sydney on 2 and 3 May … Read More
Today the Hon Greg Hunt, Minister for Health, launched the first Australian National Strategic Action Plan for Rare Diseases at Parliament House in Canberra. This plan commits the Australian Government to action under three pillars: Awareness and Education … Read More
TSC Research Round Up is a new enewsletter from TSA in which we present summary reports of some of the latest TSC-related research from Australia and around the world that we believe may be of relevance and importance to our TSC community.
Dr Kate Riney and the team at Queensland Children’s Hospital are currently recruiting patients for a formal phase II/III trial of topical rapamycin (sirolimus) for facial angiofibromas. Some funding for interstate travel is available, making this trial available for eligible … Read More
On behalf of our staff and management committee, we thank everyone who completed our survey. The aim of this survey was to find out more about you, our TSC community. We had an excellent response and your feedback will help our planning for 2020.
You may have recently read Oskar’s story in our Christmas Appeal. We are thrilled to share it has inspired a $5,000 donation. Heartfelt thanks to the team at Kerfoot Pty Ltd for your exceptionally generous Christmas gift. Oskar’s dad, Ryan … Read More
Everyone who completed TSA’s 2019 survey went into the draw for a chance to win one of two $100 gift vouchers for Westfield. Congratulations to our winners Nicole Stone in Western Australia and Rob Rossano in New South Wales. Thank … Read More