Volunteers needed

Category: Advocacy, TSA News | 0

Tuberous Sclerosis Australia is establishing a working group of families and teachers to assist us with the development of some new online resources to help empower parents and teachers/educators about the learning challenges children with TSC often face and how best to support these. Can you help?

Free Zoom Education Events

Category: Events, TSA News | 0

TSA is offering two free zoom education events on topics you have told us you need help with. We will connect you with leading experts who can offer practical tips and answer your questions. These online events are free to … Read More

Parachute Packs now available

Category: Events, TSA News | 0

Thank you to everyone who joined us on Friday 15 May, TSC Global Awareness Day for the launch of our Parachute Pack. If you missed it, you can click here to view a recording of the event. We are thrilled that families of children who are diagnosed with Tuberous Sclerosis Complex (TSC) will, for the first time, have access to accurate, up-to-date support and information packs, ensuring they are aware of life-changing early intervention treatments for their child.

Today is TSC Global Awareness Day

Category: Events, TSA News | 0

Today is TSC Global Awareness Day and we are launching our Parachute Pack. Please join us at 10am this morning for a virtual event where we will come together to mark this special day and these wonderful new educational resources for families facing a new diagnosis of TSC.

Join us for TSC Global Awareness Day

Category: Events, TSA News | 0

You are invited to join us at 10am (AEST) on Friday 15 May for a zoom video call to mark TSC Global Awareness Day and celebrate the launch of TSA’s new diagnosis parachute packs. Get your family together and have some fun.  Put on your (temporary) TSC wave tattoos and give us a song, a dance, or just a wave to show your support for everyone living with TSC.

Tips for Parents in the time of COVID-19

Category: COVID-19, TSA News | 0

You may find the following tips for parents and carers in the time of COVID-19 a helpful resource. This information was shared with us by Prof Petrus de Vries, a child and adolescent psychiatrist at the University of Cape Town, South Africa who specialises in TAND (TSC Associated Neuropsychiatric Disorders). 

Reach Out, April 2020

The April 2020 edition of Reach Out is now available to read online. This issue’s contents include:  Getting the most out of a visit to your GP, Parker’s Story,  Research News and much more… 

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