Keep up to date with all TSC-related information in our monthly newsletter.
Welcome to TSC talk with Kim which aims to share information about common issues our TSC Community reach out to our Nurse Service seeking help for. We hope that by anonymously sharing some of these questions and answers we can better inform you about some of the shared struggles our TSC Community may experience.
We are delighted to share Tuberous Sclerosis Australia’s Annual Report for 2020/2021. Thank you to everyone who has helped us to support people living with TSC. Your kindness and generosity greatly helps our work with and for the TSC community in Australia.
If you are a teenager living with TSC or the parent/carer of a child with TSC who is about to reach their teenage years, you might want to start thinking about planning the transition from child to adult care. In … Read More
It’s national carers week and the Royal Children’s Hospital, Murdoch Children’s Research Institute, Australian Genomics Genetic Epilepsy Team Australia (GETA) and The Epilepsy Foundation are working together on a research project to find out more about people’s experiences of caring … Read More
The October 2021 edition of Reach Out is now available to read online. TSA Reach Out October 2021
The international TSC surveillance guidelines recommend magnetic resonance imaging (MRI) of the abdomen to check for possible renal angiomyolipomas (AMLs) or cysts. In Australia, the high out of pocket costs of an MRI make it difficult for many people with … Read More
Buy a ticket to TSA’s virtual Comedy for a Cure happening on Saturday 30 October for your chance to win a Vully Trampoline!
There are loads of great prizes to be won in the raffle and online silent auction including an amazing trampoline so get your tickets today. Tickets start from just $40pp.
SATURDAY 20 NOVEMBER 2021. The conference will feature a 3-hour virtual event, accessed via Zoom for everyone around Australia. There will also be a full day face-to-face event in Perth, WA. The virtual event is an opportunity to find out … Read More
Come and enjoy a night of big belly laughs and an opportunity to raise vital funds for those individuals and families impacted by TSC.
If you missed or want to rewatch Associate Professor Honey Heussler’s excellent zoom education event on sleep issues in children with TSC, it is now available on our website – click here