Rare Disease Day Event in Penrith

Category: TSA News | 0

Our friends at Genetic Alliance Australia and SWAN (Syndromes Without a Name) are presenting at a Rare Disease Day event in Penrith, NSW on Friday 24th February. You are invited to join them. Rare Disease Day is an international day that … Read More

Join the discussion!

Category: TSA News | 0

The group currently hosts over 600 members of our TSC Community from across Australia and New Zealand. It is a safe and welcoming space where you can ask questions, share lived experiences, and connect with others who are also affected by TSC.

Congratulations TSC Alliance!

Category: TSA News | 0

Congratulations to our friends at TSC Alliance whose concerted advocacy efforts have resulted in the US Congress approving US$8 million in funding for the Tuberous Sclerosis Complex Research Program (TSCRP) in fiscal year 2023. To date, US$113 million has been … Read More

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