From 1 November 2021 people in Australia going through IVF will be able to claim a Medicare rebate for testing that can help them prevent passing serious genetic disorders on to their child. With the support of you, our TSC … Read More
Did you see Matlida in the news? This is a wonderful story about how a special frame enables Matilda to run free. Nine-year-old Matilda was born with TSC, which has affected her mobility, but she now easily keeps up … Read More
Our founder, Lynn Wilson is featured in a local Illawarra community magazine which is where it all began for TSA. We hope that by sharing Lynn’s story we can raise awareness about Tuberous Sclerosis Complex (TSC) and encourage people to … Read More
Thank you to the team at The Big Issue for featuring TSC Global Awareness Day in their upcoming edition. We are grateful for this opportunity to help us raise awareness about TSC. You can purchase a copy from a vendor on … Read More
Listen to the Chalk Family talk about life with TSC on ABC Radio – Hobart. Jemima, big sister to Caleb who lives with TSC shares a little about her story as a sibling of someone with a rare disease, and mum Miriam talks about lending a hand in the creation of our In Safe Hands educational resources for families and educators.
Listen to Debbie Crosby on ABC Radio talking about life with TSC. She also discusses TSA’s upcoming virtual fundraiser Comedy for a Cure. In this interview, Debbie shares how life with this rare disease is no laughing matter but that … Read More
Today the Hon Greg Hunt, Minister for Health, launched the first Australian National Strategic Action Plan for Rare Diseases at Parliament House in Canberra. This plan commits the Australian Government to action under three pillars: Awareness and Education … Read More
A recently published study from the global EPISTOP study suggests that we can use developmental assessments of babies as young as six months old to predict which will go on to be diagnosed with autism spectrum disorder (ASD).
Recently Selina, mother of Liam who lives with TSC attended and spoke at our 2018 Sydney TAND event. Selina writes a blog about the funny parts of life with TSC and autism. Here is what she had to say: “Mr … Read More
Thank you Anna and Marian for inspiring a great story on TSC and the importance of fundraising for TSC research in Australia. Take a look at the unique way they are helping TSA. Their efforts are inspired by Anna’s son … Read More