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Beyond the Guidelines

Congratulations and thanks to Clare Stuart, TSA’s former General Manager, for all her work on “Beyond the Guidelines: How We Can Improve Healthcare for People with Tuberous Sclerosis Complex from Around the World.” This paper, which has just been published, examines the state of TSC care around the world, identifies gaps in TSC care and makes recommendations for how TSC organizations and key stakeholders can work together to overcome barriers in TSC care. Well done Clare! https://www.pedneur.com/…/S0887-8994(21)00152-1/fulltext