TSA’s Impact Report 2026
We are delighted to share TSA’s (Tuberous Sclerosis Australia’s) Impact Report for the 2025/2026 financial year.
We hope you enjoy reading about the many things we’ve accomplished together.
Our TSA website continues to be appreciated as a valuable resource for everyone living with TSC in Australia and our Telehealth Nurse Service is well-used and receives consistently high feedback. Additionally, we celebrate:
- the development of two NDIS resources – one for people living with TSC and another for NDIS planners;
- the piloting of an international program to support the wellbeing of caregivers;
- the development of a program to support siblings of children living with disability;
- supporting advocacy and making submissions to the Senate Inquiry into Epilepsy Care and the Pharmaceutical Benefits Advisory Committee (PBAC) submission for PBS listing of Epidyolex.
Thank you again to all our supporters and partners for your compassion and generosity. It really is thanks to your support that we’ve been able to continue to provide essential programs and services to inform, support and connect everyone in Australia affected by TSC.
Together, we are helping to create a better life and more hopeful future for everyone living with TSC.