In 2021 Tuberous Sclerosis Australia (TSA) marked 40 years of service to the TSC Community in Australia. To commemorate this milestone we’ve created a video to highlight just how far we’ve come over these 40 years.

Our understanding of Tuberous Sclerosis Complex (TSC) and treatments, along with the help and supports that are now available for people impacted by TSC has improved dramatically. And, while we know there is still so much to do, we want to take this opportunity to celebrate the advancements and achievements that have been made. Watch our 40 years of TSA video below.

 

You can find out more about TSA’s achievements over the past 40 years in the April 2021 edition of Reach Out, in our 2021 Annual Report and stories celebrating 40 years of supporting our TSC Community are featured on page 8 of TSA’s October 2021 edition of Reach Out.

If you’d like to make a contribution in support of our 40 years of service please do so below. All donations go directly towards informing, empowering and connecting individuals and families impacted by TSC.

Donate now to celebrate TSA's 40th anniversary

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How your support helps

$50    allows us to answer a single support or information request

Our TSC Information Service provides free advice to those affected by TSC.  One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.

$100    allows an individual with TSC or their carer to attend an information event

Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.

$250    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.

Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:

  • Maintaining this website, the only online source of accurate and up to date TSC information in Australia
  • Publishing and printing our magazine Reach Out twice a year
  • Providing a TSC Nurse service offering telehealth phone and email support
  • Organising and hosting educational events online for everyone in Australia
  • Advocating for improved services and treatment for families affected by TSC
  • Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.

Our donors have enabled TSA to champion many life-changing projects in Australia including:

  • Publishing a picture book to help children understand TSC
  • Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
  • Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
  • Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
  • mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).TSA led the consumer advocacy project to help decision makers understand the impact this medicine can have on those living with TSC.

To find out more about how your donations make a difference, click here to read our latest annual report.

The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.

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