Welcome to our June e-News!

We are delighted to let you know that TSA's new website is now live. All medical content has been reviewed and updated. We encourage you to check it out. Also in this issue:

• Vote now for a health care professional who has gone 'over and above' for you or your family
  
• Zoom Education Event on how TSC may affect a woman's menstrual cycle
• Read an update on Taylor's inspiring TSC story.

We encourage you to reach out to TSA with any questions or assistance you may need.

Best wishes, Jackie Gambrell, CEO, TSA 

We've been informally known as TSA for some time and have now adopted this name in our new look logo.

We'll be bringing you all the latest information and updates on TSC on our website and in our new online TSA Insights, which replace the printed Reach Out magazine. 

Look out for our monthly eNews, plus regular TSA Insights on research and stories from our TSC Community which will come directly to your inbox.

On 15 May TSA celebrated TSC Global Awareness Day with our second Light the Way Giving Day. Thanks to the generosity of you, our TSC Community, over $57,700 was raised and landmarks across Australia lit up with blue lights to help shine a light on TSC.  Thanks to your generous support TSA has raised enough funds to continue to run our telehealth nurse service for another year. 

This award is given annually by TSA to a health care professional to recognise their efforts to improve the lives of people living with TSC in Australia. Nominations come from you, the TSC  Community. Vote now for a health care professional who has gone 'over and above' for you or your family. All health care professionals – whether they are the winner or not – are told of their nomination. We know this sort of recognition means a lot to them. 

A TSA membership is for anyone with an interest in improving the lives of people impacted by TSC. Memberships start from just $35 a year and will automatically renew each June (unless you untick that option).  Your membership will ensure no-one has to face the challenges of life with TSC alone. Can we count on your support? 

We want to understand more about the different health care experiences of people around Australia living with TSC. This important survey will provide much-needed data that can be used by TSA and health care professionals in funding applications and advocacy campaigns to try to improve the availability and standard of care that is available.

Dr Kaushi Arulpragasam will talk about:

• behavioural changes that can occur during the menstrual cycle and how to manage them
• women's gynaecological health and issues such as contraception, fertility and pregnancy planning.

This is a free event for TSA members. Registrations are essential.

Get your tickets for our 10th annual Lizzie's Lunch fundraiser. Come along for a great day raising vital funds for TSA. There are loads of fantastic prizes on be won. We hope to see you there.

Meet Taylor. Some of you may remember her as we shared her story back in 2015. Taylor is now 30 years old and her mum Shireen has recently shared an update with us.

Read Taylor's inspiring story - a story of hope, love  and determination.

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au