Welcome to our first newsletter for 2022. We hope your New Year is off to a good start. We also hope our In Safe Hands guides have helped all the parents of young children living with TSC who are starting school this year. Thank you to everyone who supported TSA last year and to all who made a donation to our holiday appeal. We look forward to working with and supporting our community again this year.

With thanks and best wishes, Jackie Gambrell, CEO, TSA

Can you help TSA in the fight to make abdominal MRIs more widely and freely available for people living with TSC? All you need to do is send an email to the Medical Services Advisory Committee (MSAC) stating why abdominal MRIs should be more widely/freely available and what difference it would make to you/your family. The closing date is 11 March. Your feedback will really help. Click below to find out more. 

TSA's January 2022 edition of Research Round-Up is now available to read online. This issue features recent research work on TAND (TSC Associated Neuropsychiatric Disorders).

You can download a free summary of the updated recommendations for monitoring TSC.

Feel free to share this information with your GP or other primary healthcare provider to help keep them up to date with the recommended surveillance.

Because of lockdowns in 2021 we know it was challenging to get out and raise funds to mark our 40 years of service. Thank you to everyone who has raised funds or expressed interest in getting involved but hasn't had the chance yet. There is still time! We've extended the opportunity for you to participate until 31 March 2022. We are close to our $40k goal - can you help us get there?

Rare Disease Day will be held on 28 February. It's a great opportunity to raise awareness for the 300 million people worldwide who live with a rare disease.

Click here to learn more.

TSC Global Awareness Day is coming up on Sunday May 15.

Save the date and watch this space. More information coming soon.

Click here for more info

Attention Sydneysiders!

Save the date for the 9th annual Lizzie's Lunch to be held on Sunday 19 June at the Hills Lodge, Castle Hill, NSW. 

Click here for more details

To support TSA's vision to create better life and more hopeful future for everyone living with TSC, please join our team of TSC Champions. Regular donations are vital to ensuring we can continue to support our TSC Community.