Greetings from TSA,

We are excited to be able to meet in person again and invite adults and carers of adults living with TSC to register now for our Community Connect Event taking place in Melbourne on 3 June. Also in this issue:

• Get involved in TSC Global Awareness Day

• Read Tilly and Holly's incredible TSC story

• Do you know about the Carer Adjustment Payment?

We encourage you to reach out to TSA with any questions or for any assistance you may need.

Best wishes,

Jackie, CEO, Tuberous Sclerosis Australia (TSA)

This is an opportunity for adults and carers of adults living with TSC and/or LAM to connect and learn.

Please join us on Sat 3 June 2023 in Melbourne. 

Thanks to a grant, funding is available for registration fees and to help with travel and accommodation costs.

Register your interest today in helping shine a light on TSC for TSC Global Awareness Day on 15 May. 

If you or a loved one lives with TSC please sign up to be a Light the Way Ambassador so TSA can continue to be a guiding light for families living with TSC.

Find out more at lighttheway.org.au

Meet Holly and Tilly, two sisters in their teens who have both recently been diagnosed with TSC. Their mum Tish has shared with us what it was like for their family to have not one but two children diagnosed with TSC. Read this incredible story today.

This is a one-off payment to assist families where a child younger than 7 is diagnosed with a severe medical condition. To get this payment you must provide full time care for a child younger than 7 and meet other rules. You must apply for the payment within 2 years from the first time a doctor diagnoses your child’s condition.

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au