Join us this evening for a discussion about the health care of adults living with TSC

Via Zoom TONIGHT Wed 14 Sept, 7pm AEST

We know that health care for adults living with TSC continues to be an issue for many of you. In this session Dr Zebunnessa Rahman (adult neurologist and epileptologist, Westmead Hospital, Sydney) and Dr Matt Sypek (nephrologist, Royal Melbourne Hospital) will present a summary of the surveillance needed by adults living with TSC and talk to some of the challenges in caring for adults living with TSC from a health system perspective.

Come to Comedy for a Cure

TSA's Comedy for a Cure is happening LIVE on Saturday 22 October at Paddo RSL, Paddington, Sydney.

We have lined up a fantastic comedy show featuring Keith Scott, Andrew Goodone, Peter Meisel, Fiona Cox and Peter Green.

Get your tickets today!

If you live in or around Sydney please join us and rally your family and friends to come too. Together we will harness the power of laughter and raise vital funds to help people living with TSC across Australia access ground-breaking new treatments and research.

Click here to find out more and Purchase your tickets today

And the survey says...

We were delighted and humbled to see the value that you place on the work that TSA is doing. Over 95% of you rated our services as good or excellent and there were many very appreciative comments, particularly about the information and resources we provide, our regular newsletters and our TSA Nurse service, run by Katrina. Click here to read more about what you've identified as the top focus activities for the future.

Find out more

Thank you TSC Heroes!

A huge thank you to Ryan and his team of TSC Heroes for participating in the City2Surf and raising over $7,100 for TSA. In honour of their son Oskar, Ryan and his family are running another race in a few weeks time and there is still time to donate! To read their story head over to tsa.org.au/heroes4oskar

Share a photo with TSA

Thank you to everyone who has already sent us a photo to include in our publications and on our website.

If you would be happy for us to share photos of the person in your family living with TSC, please email them to us at [email protected].

We are happy to receive all types of photos - a lovely portrait like this one of Asta, family shots, hospital snaps, pets included - please make sure you tell us who is in the frame. We look forward to seeing your snaps!

If you need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435

Email [email protected]

You can also find the latest TSC information at tsa.org.au

You can unsubscribe to our enews at any time by clicking the unsubscribe option at the top of this email or to opt out of all TSA mailings click here.

All information collected by TSA and provided by you is in accordance with our Privacy Policy https://tsa.org.au/about-us/policies/