Welcome to TSA's September eNewsletter. In this issue we encourage all Sydneysiders to come along to Comedy for a Cure - special early-bird ticket price now on sale, plus:

The winner of the Elizabeth Pinkerton Memorial Award 2023
TSA's Annual General Meeting is coming up
Research on epilepsy surgery

Best wishes, Jackie Gambrell, CEO, TSA

Get your tickets for Comedy for a Cure

If you live in or around Sydney, please join us for Comedy for a Cure on Saturday 28 October, from 7pm at Paddo RSL.

Come along for a hilarious night where we will laugh and raise vital funds to help individuals and families impacted by TSC (Tuberous Sclerosis Complex).

Great prizes to be won, discounts for group bookings and very funny comedians. Get your tickets now!

Get your EARLYBIRD tickets today!

Elizabeth Pinkerton Memorial Award Winner 2023

Congratulations Associate Professor Deshan Sebaratnam who is the winner of this year's Award.

Deshan is a dermatologist based in Sydney. He was nominated by several members of our TSC Community for his great work in supporting patients and also in raising awareness of the condition among trainee dermatologists. Thank you and congratulations Deshan.

All members of TSA are warmly welcomed to attend the Annual General Meeting (AGM) of TSA which will be held via Zoom on Sunday 15 October at 4pm AEDT. This will be Debbie Crosby's last AGM as a Committee member and President.

If you would like to attend, please email [email protected] and we will send you the link to the meeting. We look forward to seeing you there.

Research update on epilepsy surgery

Approximately 70-90% of patients with TSC develop epilepsy which is often difficult to treat. Indeed, drug resistant epilepsy (DRE) is twice as common in TSC than in the general population with epilepsy. Epilepsy surgery is one treatment option. We report on two recent studies into epilepsy surgery for patients with DRE caused by TSC.

Find out more

New members of our Medical Advisory Panel

We are delighted to welcome the following health care professionals to the TSA Medical Advisory Panel:

Dr Vinita Prasad
Dr Vanessa Sarkozy
Dr Helen Whitford (pictured)
Professor Deborah Yates

We very much appreciate their expertise and support.

Thank you for your feedback

Thank you to everyone who completed our TSC Health Care Survey 2023.

The survey results made for interesting reading and have given TSA and its Medical Advisory Panel valuable insights into your current thinking on care provision across Australia which will help inform our strategic action plan.

Last week was "Include a Charity Week". Research by FIA (Fundraising Institute of Australia) shows at least a third of Australians are considering leaving a gift to charity in their Will but have not yet included it. We would like to help bridge that gap and encourage and support people who want to leave a gift in their Will to TSA to do so. Please click here to find out more.

TSA is here for you and your family

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

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