We are delighted to bring you our May e-newsletter sharing lots of upcoming events and happenings. It's a busy time of year for us so you may be hearing from TSA more often than usual. In this issue:

• TSC Global Awareness Day is almost here

• Register for our Community Connect Event

• Read Dante's TSC Story

We encourage you to reach out to TSA with any questions or for any assistance you may need in managing life with TSC.

Best wishes,

Jackie, CEO, Tuberous Sclerosis Australia (TSA)

TSA is marking TSC Global Awarness Day on 15 May with a Light the Way Giving Day. We encourage you to share our appeal to help shine a light on TSC.

Please help TSA keep our Nurse service! All donations will be directed to help fund our free telehealth Nurse service so TSA can continue to offer vital support to individuals and families living with TSC.

Find out more at lighttheway.org.au

This is an opportunity for adults and carers of adults living with TSC and/or LAM to connect and learn.

Please join us on Sat 3 June 2023 in Melbourne. 

Thanks to a grant, funding is available for registration fees and to help with travel and accommodation costs.

Meet Dante. He is a happy three and a half year-old with TSC symptoms on his brain, heart, eyes and skin. He was diagnosed with TSC in-utero and had his first seizure when he was 22 months old. That was a terrifying event for his family. It lasted three and a half hours and Dante had to be incubated to make sure he kept breathing. 

Tickets are now on sale for the10th annual Lizzie’s Lunch happening on Sunday 25 June, at Hills Lodge, Castle Hill, NSW. We hope you will join us to celebrate the life of Elizabeth Pinkerton and raise much needed funds for the organisation that is part of her legacy. 

Windaroo State School is holding a gold coin mufti day later this month for TSC Global Awareness Day in honour of one of their students, Asta, who lives with TSC.

We'd love families to contact their child's school to ask them to hold a fundraising day for TSA either for TSC Global Awareness Day - or anytime! 

Check out our website for tips on how to encourage your child's school to hold a simple fundraising day for TSA. 

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au