A message from the CEO
It’s been another positive year for TSA and we’ve celebrated many successes.
Most of all, we are so grateful for our Community. That is why we are dedicating this year’s Impact Report to you. The people who share their stories, donate, volunteer, fundraise, raise awareness and give back, however they can. This year, we want to acknowledge how important each of you have been to the success of TSA in 2024.
We are sharing your stories, your faces and your achievements. It is only by working together that we can help create a better life and more hopeful future for everyone affected by TSC.
So, thank you and we hope you enjoy this new format Impact Report.
Jackie Gambrell
CEO
Our Management Committee
The work of TSA is supported by of our volunteer Management Committee, many of whom have lived experience of TSC. Our strategic plan for 2023-2025 was developed by the TSA Team and the Management Committee. A key consideration in setting our priorities is the feedback we receive each year from our TSC Community Survey.
Thanks also to the following organisations that we work closely with: TSC International, TSC New Zealand, Genetic Alliance and Rare Voices Australia.
Theory of Change
In 2024, TSA collaborated with fellows from The Social Impact Hub, who generously worked pro bono to develop a Theory of Change framework. This in-depth project involved exploring TSA’s work and clarifying how we aim to achieve our mission. A theory of change helps map out a clear path to creating positive change, providing a structured approach to address complex issues, test assumptions, and make data-driven decisions. When shared, it builds understanding and support by conveying TSA’s vision and strategic direction to the broader community.
ACTIVITIES
- Provide services to support and connect individuals living with TSC and their support networks;
- Monitor TSC research and disseminate information;
- Advocate for better policy support, health care delivery and increase funding;
- Foster connections with health care professionals
SHORT-MEDIUM TERM OUTCOMES
- Help the TSC Community to be better supported;
- Enable a thriving nursing service;
- Increase public awareness of TSC;
- Mobilise more engagement with Government and other funders
LONG TERM OUTCOMES
- A connected and informed TSC Community;
- Improved literacy among health care professionals;
- Earlier diagnosis of TSC;
- A sustainable TSA with resources to deliver on our mission;
- A growing awareness of TSC in the general population
IMPACT
- Everyone living with TSC is empowered to have a better quality of life
Your words
our mission
Our Community
This year, we’re thrilled to celebrate the amazing people in our TSC Community who have shared their stories with us. Each story shines a light on the everyday courage, resilience, and kindness that brings us together. Through their voices, we’re reminded of the strength and hope we share as we look forward to a brighter future.
Lucia
Alana
Olivia
Lily
Katalina
Amanda
Asta
Hamish
Oliver
Light the Way
Our 2024 Light the Way Giving Day on TSC Global Awareness Day was an incredible show of support from our Community! Together, we raised over $63,000, with nearly half of those donations inspired by our passionate TSC family ambassadors and champions. Thanks to 334 generous supporters, with an average gift of over $160, we’ve strengthened our ability to make a difference for everyone impacted by TSC. The heart and dedication of our fundraisers and donors truly light the way for a brighter future.
Sze-Ann Woon & Ryan Michael, parents to Karamo and Light the Way Fundraising Champions
Kirsten Kovacevic, mum to Katalina and Light the Way Fundraising Champion
Renee Bliudzius, an adult living with TSC and Light the Way Fundraising Champion
Kelly Bright, mum to Arielle and Light the Way Fundraising Champion
Kristy Ferguson, mum to Kennedy and Light the Way Fundraising Champion
Meg Gould talking about Robert Gould, an adult living with TSC and Light the Way Fundraising Champion
Mimi and Rob Rossano, parents to Roxie and Light the Way Fundraising Champions
Samantha Smith, mum to Isabel and Light the Way Fundraising Champion
Heidi Paech, mum to Asta and Light the Way Fundraising Champion
Medical Advisory Panel
Our Medical Advisory Panel helps guide and support TSA (Tuberous Sclerosis Australia). We are indebted to this team of TSC (Tuberous Sclerosis Complex) experts which assists in reviewing and writing materials for our website and new publications, facilitates introductions to other health professionals and researchers and keeps us in the loop on important research, medical and treatment developments. You can learn more about the professionals who sit on that panel by clicking below.
Financial
Statements
Funding
Total fundraising revenue: $179,075
Thank you to Our Community who makes all of this possible.
Please view our previous reports here.
