Welcome to our eNews for June 2024. In this issue:

• Vote for a TSC health care professional who has helped you or your family
• Find out about a UK-based sleep study for people living with TSC is now recruiting
• Read about autism in children with TSC

Best wishes, Jackie Gambrell, CEO, TSA 

Voting is now open for the Elizabeth Pinkerton Memorial Award 2024. This award is given annually by TSA to a health care professional to recognise their efforts to improve the lives of people living with TSC in Australia.

Nominations come from you, the TSC  Community. Vote now for a health care professional who has gone 'over and above' for you or your family. All health care professionals – whether they are the winner or not – are told of their nomination. 

As you probably know, it can be very tax-efficient to make a donation at this time of year. If you would like to make a tax time donation we hope you will chose to support TSA's work with and for everyone in Australia affected by TSC.

Donate today to help TSA continue to improve the lives of everyone living in Australia with TSC.

The University of Birmingham is recruiting for a study into sleep and people living with TSC.

The study is open to any caregiver caring for a child, adolescent or adult with TSC anywhere in the world who is currently experiencing poor sleep.

We first met Lucia when she was two. Her parents, Francesca & Pep, were learning about her TSC2 & PKD1 diagnosis. 

Francesca, Lucia's Mum, has kindly shared an update of their TSC journey.

This new study from Dr Rebecca Mitchell and the research team at Royal Children's Hospital, Melbourne investigated the characteristics of autism in children with TS, referred to as the “autistic phenotype”. 

THANK YOU to everyone who helped make our Light the Way Giving Day on TSC Global Awareness Day (15 May) such a huge success.  Thanks to your incredible generosity, over $62,000 was raised to support people living with TSC and more than 25 landmarks across Australia lit up with blue lights to help shine a light on TSC.  

A special shout out to our match donors and our TSC Champions. You are a very special group of people. 

Lily’s story was first published by TSA in 2014 when Lily was just 8 years old. Lily has recently celebrated her 21st birthday.

Lily’s mum Narelle has kindly shared with us an update on their family's TSC journey. 

Earlier this year we shared the good news that magnetic resonance imaging (MRI) of the abdomen would in future be funded under the medical benefits scheme (MBS) for patients living with TSC in Australia.

Funding for MRI of the abdomen under the MBS for people with a confirmed diagnosis of TSC will start from 1 July 2024. This will make abdominal MRIs free to access through bulk billing services.