TSA is almost ready to bring you a new and improved website, to help you more easily find the information and support you need. Until then, in this issue:

• Upcoming TSC Connect Event in Melbourne
• Become an Ambassador for TSA
• Two clinical trials now recruiting
  
• TSC Clinic for adults in NSW
  

We encourage you to reach out to TSA with any questions or assistance you may need as you manage yours or a loved ones TSC.

Best wishes,

Jackie, CEO, Tuberous Sclerosis Australia (TSA)

TSA is developing its second TSC Connect Event for adults living with TSC. The event will be held on Sat 3 June 2023 in Melbourne. This is an opportunity for adults living with TSC to connect and learn more about managing TSC. We have some great speakers lined up. Save the date. More information coming soon.

Register your interest today in helping shine a light on TSC for TSC Global Awareness Day on 15 May. 

If you or a loved one lives with TSC please sign up to be a Light the Way Ambassador so TSA can continue to be a guiding light for families living with TSC.

Find out more at lighttheway.org.au

Researchers at The Royal Children’s Hospital in Melbourne are conducting a new medical research study exploring the potential benefits of medicinal cannabis for managing behavioural symptoms in children with developmental disabilities. 

Please click here to find out more

Sydney Children's Hospital is now recruiting for the TSC-STEPS research trial (formerly known as STOP2). The purpose of this ground-breaking research is to learn more about the safety and efficacy of early Sirolimus treatment to prevent or delay seizure onset in infants diagnosed with TSC. Infants 0 to 6 months old who have been diagnosed with TSC and have no history of seizures may be eligible to participate. 

If needed, TSA can offer some assistance with travel costs for families across Australia who participate in the trial. 

Please click here to find out more.

TSC Heroes Amelia and Kelly have signed up once again for the Gold Coast marathon on 2 July in Queensland.

Will you join our team of TSC Heroes and raise funds and awareness for TSC.

All TSC Heroes receive a free TSC Hero t-shirt. Please click here to find out more.

Did you know there is a TSC Multidisciplinary Clinic for adults living with TSC at Westmead Hospital in NSW?

Dr Zebunnessa Rahman, neurologist at Westmead Hospital has been running a TSC Clinic since 2015.

If you would like any information on accessing this clinic please connect with TSA's nurse at [email protected]

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au