Welcome to our November newsletter. In this issue:

• Lord Mayor's Christmas Concert Invitation
• Research Round Up October edition out now
• AGM update
• Thank you for supporting Comedy for a Cure

Best wishes to everyone 

Jackie, CEO, Tuberous Sclerosis Australia (TSA)

Families living with TSC are invited to the Glebe Christmas Concert at Bicentennial Park in Sydney. This is a special opportunity for families to get together, relax and enjoy seasonal festivities in a safe and inclusive environment. Email  [email protected] to confirm your tickets. Only 10 are available. Be quick!

In this summary of some of the most important TSC-related research from Australia and around the world we have included two recent studies on developmental outcomes in infants that we think will be of interest to many of you.

TSA hosted its 5th Annual Comedy for a Cure at Paddo RSL on Saturday 22 October 2022. What a great night! We are thrilled to share we raised over $25,000. Thank you to everyone who supported the event. Special shout out to Miia Groenewald who so bravely and beautifully shared her family’s story about their son Oskar who lives with TSC. Click here to check out the photos and read more about the event

Thank you to everyone who attended TSA's Annual General Meeting (AGM) on Saturday 5 November. We were sad to say farewell to two Committee members - Patrick Norris (pictured), our long-serving and excellent Treasurer and Rob Haggett, our fantastic Secretary. Thank you to both Patrick and Rob for everything they have done for TSA. They have both made a real difference. Click here to read more about the AGM and our new appointments.

We are excited to be launching our new website in early 2023, which has been made possible thanks to grant funding from the Social Sector Transformation Fund. As part of this evolution, we have made the decision to stop publishing the magazine Reach Out. Instead, with the launch of our new website we will publish the regular content you have been receiving in Reach Out, such as TSC updates and Community Stories in an online only format. We will publish these throughout the year so they will be both more regular and more timely. Click here to read more.

If you need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au