Welcome to our last eNews for 2024. The TSA team will be taking a two-week break from Monday 23 Dec and will be back on board on Monday 6 January. We know this can be a tough time for many of our TSC Community. If you require support we encourage you to reach out to your health care professionals.

We wish everyone a safe festive period.

Jackie Gambrell, CEO, TSA and all the TSA team

Have you been watching Olivia's story?

One of the stories that touched our hearts this year was Olivia's. Despite facing many challenges throughout her life because of her TSC, Olivia is a celebrated roller skater who regularly wins trophies and awards.

Please share Olivia's story with your friends and family and if you or they are considering making an end of year donation, please consider TSA. All money raised will go towards helping people like Olivia living with TSC have the best chance of a bright future thanks to early intervention, regular support and up-to-date information on treatments and therapies.

Be a Beacon of Hope

TSC-related skin issues

If you missed Associate Professor Deshan Sebaratnam's excellent presentation on TSC-related skin issues, then the good news is that you can watch it on our website by clicking on the button below. Many thanks to Deshan for sharing his considerable expertise with us.

Watch Now

Is your child living with TSC starting school in 2025?

If your child living with TSC is starting school in 2025, you should check out our In Safe Hands resources. We have a booklet for family members and carers and another for your child's teachers and educators.

Families who have already used these resources say they are 'an amazing source of information based on real life experiences.'

Read the Resources

Thank you for your feedback

Thank you to everyone who completed our recent survey. Encouragingly, 96.5% of you rated TSA’s services as excellent or good. Thank you for the many positive and appreciative comments, particularly about the nurse service and the information we produce, including our website.

Survey Outcomes

New research on sirolimus

Sirolimus is often used to treat conditions such as TSC and LAM which are linked to the overactivation of the mTOR pathway. Despite the usefulness of sirolimus in managing these conditions, there is limited research on its long-term safety, especially in children. This study looked at the long-term safety of sirolimus, focusing on its effects on growth in children.

Read the Research

Thank you Alison

Thank you to everyone who attended our virtual AGM on 18 November and a HUGE THANKS to Alison McIvor (pictured) who stepped down from the TSA Committee after 9 years as a much valued and highly committed member. We are pleased that Alison will remain a TSA Regional Contact for Victoria.

We are delighted to welcome Rob Rossano as our new Vice President and also officially welcome Paul Singh and Catherine Whelan to the Committee.

For more...

To find out more about what we're currently working on, please click here.

To catch up on other recent news including research and events, please click here.

TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

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