Welcome to our eNews for May 2024. In this issue:

• It's TSC Global Awareness Day this week - please get involved in raising awareness of TSC
• Read Katalina's story

Best wishes, Jackie Gambrell, CEO, TSA 

We’re raising awareness and money to help light the way for everyone living with TSC. Your donations and fundraising efforts will help us keep running our services, like the TSA Telehealth Nurse, and ensure everyone living with TSC has free access to the information and support they need. You can find more information on how to help raise awareness here

On Wednesday 15 May over 25 landmarks across Australia will be lighting up blue in recognition of TSC Global Awareness Day.

If you are in the ACT, our TSA Telehealth Nurse, Katrina, will be visiting Old Parliament House, Black Mountain Tower (Telstra Tower), and The Royal Australian Mint. We invite you to join her and show your support.

Wherever you are in Australia, we urge you to get out if you can and help us capture photos of the landmarks lighting up for TSC. Please send your photos to [email protected]

Dr Helen Whitford (pictured) has moved from Melbourne to Townsville University Hospital.  Although she will be sorely missed in Melbourne, we wish her all the best in her new role.  

Professor Deborah Yates will remain in Sydney but is moving the LAM Clinic from St Vincent's Public Hospital to Macquarie University Hospital, starting in August 2024.  

We are delighted that both Helen and Deborah will remain on TSA's Medical Advisory Panel.

Kirsten and her husband Boris live in Perth in Western Australia with their two gorgeous daughters – Anastasia and Katalina.

Katalina was diagnosed with TSC before she was even born. She is now 6 years old and is about to undergo her third brain surgery.

THANK YOU to two amazing groups of recent fundraisers. 

Harper and some of her friends (pictured) got together and organised a bake sale to raise $230 for TSA.  Harper's sister Asta lives with TSC. 

Congratulations also to Yvonne and the rest of Thomas' tribe who recently raised an amazing $1,280 in support of TSA by organising a local raffle.