Welcome to our March 2022 newsletter. We hope you and your family are safe with the wild weather around the country. Our thoughts are with everyone in flood affected areas. In this issue we update you on some changes in the TSA team and launch a new podcast for GPs.

With thanks and best wishes, Jackie Gambrell, CEO, TSA

We are delighted to introduce Katrina Watt, TSA's new Telehealth Nurse. Katrina is looking forward to connecting with you and helping to keep our TSC Community informed and supported. 

Dr John Lawson, one of TSA's long-standing medical advisors, is moving into a new role with NSW Health running clinical trials and linking people in rural Australia into those trials. It is almost impossible to put into words the sheer magnitude of John's contribution to TSC and TSA. On behalf of the TSC Community we thank John for the significant contribution and difference he has made and we congratulate him on his exciting new role. 

TSA would like to extend its thanks to Dr Clara Chung, Clinical Geneticist at Sydney Children’s Hospital, Randwick, NSW and the team at Healthed for producing a podcast for GPs and primary health care professionals which talks about what TSC is and why early diagnosis and intervention is so important. Please share this podcast with your health care professionals/colleagues.

THANK YOU to everyone who sent off an email to MSAC in support of our application to make abdominal MRI's more freely and widely available for people living with TSC. We will keep you posted on developments. 

In conjunction with TSC Global Awareness Day this year TSA is launching something new. We are looking for some ambassadors to shine a light on TSC. Can you help? To find out more please call or email Kate on 0434391430 or  [email protected]