Welcome to our October eNewsletter. In this issue:

• Please complete our TSA Survey 2026 to help us understand what is important to you
• Congratulations to Dr Denise Chan! 
• Please consider sharing your TSC story

And more......Best wishes 

Jackie, CEO, TSA 

Please tell us what you want from TSA completing the survey which is open to anyone aged 16 or over who lives with TSC and to family members and carers. 

Just click on the button or scan the QR code.

And, if you provide your name and email address you will automatically be entered into our draw to win a $100 eftpos gift card! The first prize will be drawn on Mon 26 Oct. 

Dr Denise Chan, Paediatric Neurologist and Epilepsy Specialist at Sydney Children's Hospital (pictured) is the very deserving winner of this year's Elizabeth Pinkerton Memorial Award. Denise’s nominations came from parents of children living with TSC.

The TAND Consortium also received a Special Mention, in recognition of its significant contribution to improving the lives of individuals and families living with TSC around the world, including in Australia.

Our Community Stories are a rich source of information and connection. They help and inspire other members of the TSC Community. 

If you would be happy to share your family's TSC story, we'd love to hear from you.

Please email [email protected] using the subject line Community Story. 

Our latest Research Insight looks at a study which investigated how common sleep issues are in adults living with TSC and explored how specific clinical features (such as mental health and epilepsy) and routine medications (including mTOR inhibitors and antiseizure medications) contribute to sleep disruption.

TSA's Annual General Meeting 2026 will be held via Zoom at 7pm AEDT on Wednesday 28 October.

All members are invited to join us. Please just send an email to [email protected] to be sent a link to join the meeting.

We look forward to seeing you there.