Welcome to our March eNewsletter. In this issue we invite you to:

• Attend our Zoom event on genetic testing
• Register your interest in this year's Light the Way
• Join our TSA committee 
• Read Zion's story ...  and more! 

Best wishes 

Jackie, CEO, TSA 

Genetic testing is important to find out whether other family members have TSC and also when planning a family. In this online Zoom Information Event, Dr Fiona McKenzie, Clinical Geneticist will tell us more about when it is advisable to get genetic testing and what is involved.

This event is FREE for TSA members.

This article was written by the dedicated TSC Clinic team at Sydney Children’s Hospital. Their work reflects extensive experience supporting children and families living with TSC and brings together current research and clinical practice to help guide diagnosis, monitoring and care.

Zion is 18 years old and lives in Queensland with his family. He was born in Sydney and was diagnosed with Tuberous Sclerosis Complex (TSC) at the age of 9, after experiencing a seizure shortly after his family had moved suburbs. For Zion and his family, the diagnosis came quickly, but brought with it a wave of uncertainty and adjustment. We thank Zion and his family for sharing their story. 

Some lights never really go out - they just wait for the moment they’re needed most. This year, Light the Way returns, bringing our Community back together to light the way for people living with TSC. It’s more than a fundraising campaign - it’s a reminder that even in the hardest moments, no one with TSC walks alone. Together, we’ll spark hope, fuel support, and light the way toward a brighter future. Register your interest now.