Welcome to our first eNewsletter for 2026. We hope the new year is off to a good start for you.

It's been a busy start at TSA with the launch of our new NDIS resources. We hope you find these useful and we welcome your feedback.

Best wishes

Jackie, CEO, TSA

New NDIS resources

Congratulations to Katrina, our TSA Nurse, and the many members of our Community and other supporters who have been involved in developing our new NDIS resources.

We have a new guide for people living with TSC and another for NDIS Planners to help them understand more about TSC and its impacts. Both can be read on our website or downloaded in pdf form.

Take a look

Genetic testing Zoom event

Most people with TSC have enough physical signs of the condition for a specialist to diagnose them without the need for genetic testing. Genetic testing can however be helpful in other situations such as finding out whether other family members have TSC and when planning a family.

In this online Zoom event, Dr Fiona McKenzie, Clinical Geneticist with Genetic Health WA will tell us more about when it is advisable to get genetic testing and what is involved. This event is FREE for TSA members.

Research on epilepsy surgery

This excellent research paper was written by Dr Simon Harvey, who is retiring after a long career at The Royal Children’s Hospital, Melbourne. Dr Harvey is well known within the Australian TSC community for his commitment to, and support of, children with complex, drug-resistant epilepsy and for helping many families navigate difficult treatment decisions. THANK YOU Dr Simon Harvey.

Thank you

Thank you from TSA and Otis (our poster boy!) to everyone who donated to TSA’s end of year campaign.

Your generous support raised just over $9,000 to help people living with TSC. Amazing!

Looking for a New Year challenge?

You can now fundraise for TSA via the online fundraising platform Grassrootz. Events include:

Brisbane Marathon
Gold Coast Marathon
Cole Classic
Melbourne Marathon Festival and Run Melbourne

and there are more here: https://www.grassrootz.com/events

We hope it will inspire you to compete for TSA.

TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

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