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In this issue:

  • would you like to say a special thanks to one of your health care team?
  • do you know about diagnostic overshadowing?
  • read Harrison's story

Wishing you all very best wishes

Jackie, CEO, TSA 

Say a special thanks

The Elizabeth Pinkerton Award is given annually by TSA to a health care professional who has gone 'above and beyond' for a patient living with TSC in Australia. Nominations come from you, the TSC Community. If you would like to say a special thanks and nominate one of your health care professionals, please nominate them now.  

Nominate Now

Diagnostic overshadowing

If you, or someone you care for, lives with TSC, you might have experienced times when new symptoms or concerns were dismissed with the explanation: “it’s just part of TSC.” However, this simplification – known as diagnostic overshadowing - can sometimes lead to missed or delayed diagnoses. Read more about what diagnostic overshadowing is, how to spot it, and what you can do in our latest Research Insight. 

Learn More

Harrison

Amanda first shared Harrison’s story with TSA in 2020 when he had just turned 5 years old. We are  grateful to Amanda for providing us with this update on their story in which she says they have seen such  positive change in Harrison and his journey with TSC.
Read Harrison's Story

End of financial year

June is a a great time to choose to make a charity donation because your donations are fully tax deductible and may be claimed back right away. Additionally, when you choose to make a donation to TSA (Tuberous Sclerosis Australia) you will be helping everyone across Australia living with TSC.

Donate Now

Milestone moments 

If your loved one living with TSC - or you, as a person living with TSC - is celebrating a birthday or another milestone like recovering from an operation or learning to ride a bike, please send us a photo, along with name, birthdate and age (if you want to share this) and any other details and we'll share the celebration on TSA social media.

Email [email protected]

For more... 

To find out more about what we're currently working on, please click here.

To catch up on other recent news including research and events, please click here. 

TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service. 

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

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