Congratulations!

Many congratulations to Dr Simon Harvey, paediatric neurologist, epileptologist and clinical lead of the epilepsy program at The Royal Children’s Hospital, Melbourne for winning the Elizabeth Pinkerton Memorial Award 2024. Simon, who is very well known in our TSC Community, and has helped numerous children living with TSC, is the first health care professional to win this award for the second time.

Where can carers get help and support?

As a carer it can be hard asking for help or difficult even to know where to turn to for support. On Tuesday 15 October, Jacqui Caudle will tell us about Carer Gateway, a free, national program which exists to help people in caring roles find and access free and essential supports such as counselling, peer support and respite.

Please join us for this free event and make sure you get the help and support you deserve.

TSC-related skin issues

Four in five people with TSC have skin issues, and they can be very challenging. In this online education event, expert dermatologist Associate Professor Deshan Sebaratnam will discuss TSC-related skin issues - symptoms, diagnosis, treatment and management. Join us on Tues 19 November to find out more.

mTOR inhibitor research

TSA supports research to further understand the safety and efficacy of early mTOR inhibitor treatments in preventing or delaying seizure onset in babies with TSC. This is a summary of STOP2A, a clinical trial involving 5 infants diagnosed with TSC who were younger than 6 months with no history of seizures who were (pre-symptomatically) treated with sirolimus.

We have a vacancy on our TSA Management Committee. As a committee member, you will fully participate in the governance, strategy setting and monitoring of TSA. If you have passion and enthusiasm to be part of the team helping support people living with TSC, we'd love to hear from you.

Find Out More

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To find out more about what we're currently working on, please click here.

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TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email nurse@tsa.org.au

You can also find the latest TSC information at tsa.org.au

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